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UID:18866-1741269600-1741275000@www.sumairafoundation.org
SUMMARY:Navigating the Transition from Pediatric to Adult Neuroimmunology Care
DESCRIPTION:We’re calling pediatric patients and their parents/caregivers to join us on March 6th for a special webinar featuring experts from Children’s National Hospital and George Washington University. \nThis webinar will provide an overview of the transition from pediatric to adult medical care\, featuring insights from a pediatric neurologist\, social worker\, and a neuropsychologist. \nTopics will include maintaining continuity of care\, managing complex medical conditions\, self-advocacy in healthcare settings\, and addressing social and emotional considerations. The discussion aims to support patients\, families\, and caregivers in navigating this important transition effectively.
URL:https://www.sumairafoundation.org/event/navigating-the-transition-from-pediatric-to-adult-neuroimmunology-care/
LOCATION:Virtual: United States\, United States
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/02/Childrens-National.png
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DTSTART;TZID=Africa/Bangui:20250317T180000
DTEND;TZID=Africa/Bangui:20250317T193000
DTSTAMP:20260507T161406
CREATED:20250227T205412Z
LAST-MODIFIED:20250317T151413Z
UID:18883-1742234400-1742239800@www.sumairafoundation.org
SUMMARY:NMOSD in sub-Saharan Africa
DESCRIPTION:In honor of NMO Awareness Month 2025\, TSF is excited to present “NMOSD in Sub-Saharan Africa\,” a live event exploring the landscape of NMOSD and other rare neuroimmunological disorders. \nJoin us on Monday\, March 17th\, for an exclusive webinar featuring Dr. Mashina Chomba (Zambia)\, Dr. Fiifi Duodu (Ghana)\, Dr. Pearl Thomas (South Africa)\, and Dr. Cynthia Wendo (Kenya). The experts will provide insights and answer questions about the prevalence and incidence of NMOSD\, diagnostics\, available treatments\, immunizations\, clinical trials\, and more. We invite patients\, caregivers\, clinicians\, researchers\, and advocates from around the world to attend. \nLive participants will have the opportunity to ask questions directly to the experts. The webinar will be recorded and made available for replay on TSF’s YouTube channel. \nRegistration is required.
URL:https://www.sumairafoundation.org/event/nmosd-in-sub-saharan-africa/
LOCATION:Virtual: South Africa\, South Africa
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/02/NMOSD-in-Sub-Saharan-Africa-1280-x-720-px.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250324T200000
DTEND;TZID=Europe/Paris:20250324T210000
DTSTAMP:20260507T161406
CREATED:20250304T230139Z
LAST-MODIFIED:20250304T230200Z
UID:18958-1742846400-1742850000@www.sumairafoundation.org
SUMMARY:La gestion de la fatigue dans la NMOSD et la MOGAD
DESCRIPTION:La fatigue et la fatigabilité touchent toutes les personnes souffrant de NMOSD et de MOGAD. Cela reste la première cause de baisse de la qualité de vie mais est assez difficile à gérer. Imprévisible\, durable\, la fatigue n’est pas gérable avec une pilule miracle. Pour aborder ce sujet nous serons en compagnie du docteur Nathalie Moreau\, Cheffe de service de l’unité de Médecine Physique et de Réadaptation de l’Hôpital Léopold Bellan à Paris et de Véronique Carrette\, sophrologue et hypnothérapeute. Vous pourrez poser vos questions à nos intervenantes. Ce programme est rendu possible grâce au soutien d’Amgen.
URL:https://www.sumairafoundation.org/event/la-gestion-de-la-fatigue-dans-la-nmosd-et-la-mogad/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/03/Veronique-Carrette-et-Nathalie-Moreau.jpg
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DTSTART;TZID=America/New_York:20250325T190000
DTEND;TZID=America/New_York:20250325T200000
DTSTAMP:20260507T161406
CREATED:20250311T170125Z
LAST-MODIFIED:20250311T170125Z
UID:18994-1742929200-1742932800@www.sumairafoundation.org
SUMMARY:Immunizations for the Immunocompromised
DESCRIPTION:Vaccines play a crucial role in protecting immunocompromised patients\, as their weakened immune systems make them more vulnerable to infections. Vaccines also help prevent the spread of contagious diseases to others. For immunocompromised patients\, the risk of severe illness or complications from diseases such as flu\, pneumonia or COVID-19 is significantly higher\, making vaccination a key preventative measure. Join us for an insightful discussion on March 25th about immunizations for the immunocompromised led by Dr. Elias Sotirchos\, neuroimmunologist and Assistant Professor of Neurology at The Johns Hopkins University School of Medicine. Attendees joining live will have the opportunity to ask Dr. Sotirchos questions about vaccines and immunizations in real time. This program is made possible with support from Alexion.
URL:https://www.sumairafoundation.org/event/immunizations-for-the-immunocompromised/
LOCATION:Virtual: United States\, United States
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/03/Elias-Sotirchos.png
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