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DTSTART;TZID=America/New_York:20240301T100000
DTEND;TZID=America/New_York:20240301T110000
DTSTAMP:20260507T071450
CREATED:20240220T202321Z
LAST-MODIFIED:20240229T141927Z
UID:16189-1709287200-1709290800@www.sumairafoundation.org
SUMMARY:Myths & Facts - Family Planning Considerations for NMOSD & other rare neurological conditions
DESCRIPTION:To celebrate NMO Awareness Month 2024\, The Sumaira Foundation invites you to join an insightful discussion about an important topic: Family Planning. \nJoin us on March 1st for a live webinar featuring Dr. Ahmed Shatila who will share myths & facts about family planning in people living with NMOSD & other rare neuro-immunological conditions. Dr. Shatila will discuss contraception and other factors that are important for people to plan with their neurologists and obstetricians. He will talk about the implications of a relapse before or during pregnancy and how to approach certain scenarios. Dr Shatila will outline the benefits and risks of several medications and options for treatment scheduling\, symptom management\, and MRI preparation. Finally\, we’ll conclude with discussing the considerations for labor and breastfeeding. \nThis meeting will be conducted in English with Arabic subtitles. Attendees will have the opportunity to ask Dr. Shatila questions in real time. This webinar will be recorded and made available on TSF’s YouTube channel and global website. \nThis program is made possible with support from AstraZeneca.
URL:https://www.sumairafoundation.org/event/myths-facts-family-planning-considerations-for-nmosd-other-rare-neurological-conditions/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Ahmed-Shatila.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Copenhagen:20240314T160000
DTEND;TZID=Europe/Copenhagen:20240314T170000
DTSTAMP:20260507T071450
CREATED:20240229T142736Z
LAST-MODIFIED:20240229T142736Z
UID:16321-1710432000-1710435600@www.sumairafoundation.org
SUMMARY:Forståelse af ligheder og forskelle mellem NMOSD\, MOGAD og MS
DESCRIPTION:Du inviteres til TSF’s første danske webinar! \nVi inviterer dansktalende patienter\, plejere\, klinikere\, forskere og fortalere til at deltage i vores webinar – Forståelse af ligheder og forskelle mellem NMOSD\, MOGAD og MS – med prof. Nasrin Asgari\, neurolog ved Syddansk Universitet. \nDeltagere\, der vil deltage i live-begivenheden\, vil have mulighed for at stille spørgsmål til prof. Asgari. Dette webinar vil blive optaget og tilgængeligt til afspilning på TSF’s YouTube-kanal og multimediebibliotek. \nDette program er gjort muligt med støtte fra Amgen.
URL:https://www.sumairafoundation.org/event/forstaelse-af-ligheder-og-forskelle-mellem-nmosd-mogad-og-ms/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Nasrin-Asgari-1024x576-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240318T190000
DTEND;TZID=Europe/Amsterdam:20240318T200000
DTSTAMP:20260507T071450
CREATED:20240229T152627Z
LAST-MODIFIED:20240229T152627Z
UID:16324-1710788400-1710792000@www.sumairafoundation.org
SUMMARY:Verleden\, heden en toekomst van behandelingen voor NMOSD en MOGAD
DESCRIPTION:In deze webinar bespreken we de snel veranderende kennis over immuuntherapie bij NMOSD en MOGAD. Welke behandelingen gebruiken we nu? Welke nieuwe behandelingen zijn recent goedgekeurd? En wat heeft de toekomst in petto aan mogelijke innovatieve behandelingsopties? \nProf. Dr. Barbara Willekens\, Universitair Ziekenhuis Antwerpen en Universiteit Antwerpen\, België en dr. Beatrijs Wokke\, Erasmus Medisch Centrum Rotterdam\, Nederland\, loodsen u door het complexe behandel-landschap van deze zeldzame ziekten. \nDeelnemers aan het live webinar krijgen de mogelijkheid om vragen te stellen aan de experts. Dit webinar wordt opgenomen en kan worden afgespeeld op het YouTube-kanaal en de multimediabibliotheek van TSF. \nDit programma wordt mogelijk gemaakt met steun van Amgen.
URL:https://www.sumairafoundation.org/event/verleden-heden-en-toekomst-van-behandelingen-voor-nmosd-en-mogad/
LOCATION:Virtual: Amsterdam\, Netherlands
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Barbara-Willekens-Beatrijs-Wokke-1024x576-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Berlin:20240319T190000
DTEND;TZID=Europe/Berlin:20240319T200000
DTSTAMP:20260507T071450
CREATED:20240319T183322Z
LAST-MODIFIED:20240319T195906Z
UID:16455-1710874800-1710878400@www.sumairafoundation.org
SUMMARY:Was Betroffene über NMOSD und MOGAD wissen sollten
DESCRIPTION:Sie sind zum kommenden Webinar von TSF Deutschland eingeladen: Was Betroffene über NMOSD und MOGAD wissen sollten. \nBesuchen Sie uns am Dienstag\, den 19. März um 19:00 Uhr MEZ zu einer aufschlussreichen Diskussion mit Dr. Joachim Havla (Ludwig-Maximilians-Universität München) über alles\, was Sie über NMOSD und MOGAD wissen müssen! \nTeilnehmer des Live-Webinars haben die Möglichkeit\, Dr. Havla Fragen zu stellen. Dieses Webinar wird aufgezeichnet und kann auf dem YouTube-Kanal und der globalen Website von TSF wiedergegeben werden. \nDieses Programm wird mit Unterstützung von Amgen ermöglicht. Eine Anmeldung ist erforderlich.
URL:https://www.sumairafoundation.org/event/was-betroffene-uber-nmosd-und-mogad-wissen-sollten/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/03/Joachim-Havla.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20240320T180000
DTEND;TZID=Europe/Rome:20240320T190000
DTSTAMP:20260507T071450
CREATED:20240229T153236Z
LAST-MODIFIED:20240319T184618Z
UID:16327-1710957600-1710961200@www.sumairafoundation.org
SUMMARY:La storia e l'evoluzione di NMOSD
DESCRIPTION:Per celebrare il Mese della Consapevolezza NMO 2024\, TSF Italia ti invita a partecipare a un webinar molto speciale con il Professor Luca Massacesi e la Dott.ssa Sara Mariotto mercoledì 20 marzo alle 18:00 CET. \nIn questo webinar in formato intervista\, verrà fatto un excursus storico sulla neuromielite ottica\, toccando anche diversi aspetti tra cui la complessa diagnosi differenziale e le conseguenti difficoltà nelle scelte terapeutiche prima della scoperta degli anticorpi anti-AQP4\, l’impatto della scoperta degli anticorpi stessi e l’apporto dei diversi criteri diagnostici. Infine\, verranno discussi aspetti più recenti come la caratterizzazione patogenetica dell’NMOSD facendo accenno anche alla diagnosi differenziale con malattie di più recente identificazione e le ultime strategie terapeutiche. \nI partecipanti all’evento dal vivo avranno l’opportunità di porre domande agli esperti. Questo webinar sarà registrato e sarà disponibile per la riproduzione sul canale YouTube e sulla libreria multimediale di TSF. \nQuesto programma è reso possibile grazie al supporto di Amgen.
URL:https://www.sumairafoundation.org/event/la-storia-e-levoluzione-di-nmosd/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Luca-Massacesi-Sara-Mariotto-1024x576-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Sao_Paulo:20240321T190000
DTEND;TZID=America/Sao_Paulo:20240321T200000
DTSTAMP:20260507T071450
CREATED:20240229T153945Z
LAST-MODIFIED:20240321T170842Z
UID:16330-1711047600-1711051200@www.sumairafoundation.org
SUMMARY:Compreendendo as semelhanças e diferenças entre NMOSD\, MOGAD e MS
DESCRIPTION:Para celebrar o Mês de Conscientização sobre NMO 2024\, convidamos pacientes\, cuidadores\, médicos e pesquisadores de língua portuguesa a participarem do primeiro webinar português da TSF: Compreendendo as semelhanças e diferenças entre DENMO\, MOGAD e EM. \nEste webinar ao vivo contará com a participação do Professor Jefferson Becker\, da Pontifícia Universidade Católica do Rio Grande do Sul\, que descreverá as semelhanças e diferenças entre NMOSD\, MOGAD e esclerose múltipla. \nOs participantes do webinar ao vivo terão a oportunidade de perguntar ao Prof. Becker questões em tempo real. A sessão será gravada e disponibilizada no YouTube. \nEste programa é possível com o apoio da Amgen em colaboração com a The Sumaira Foundation\, BCTRIMS e NMO Brasil.
URL:https://www.sumairafoundation.org/event/compreendendo-as-semelhancas-e-diferencas-entre-nmosd-mogad-e-ms/
LOCATION:Virtual: Brazil\, Brazil
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/02/Jefferson-Becker-1024x576-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240321T190000
DTEND;TZID=Europe/Paris:20240321T200000
DTSTAMP:20260507T071450
CREATED:20240314T143933Z
LAST-MODIFIED:20240321T171817Z
UID:16441-1711047600-1711051200@www.sumairafoundation.org
SUMMARY:La rééducation et la récupération dans les maladies neurologiques (SEP\, NMOSD\, MOGAD)
DESCRIPTION:A l’occasion du mois de sensibilisation à la NMOSD\, le docteur Cécile Donzé nous fait le plaisir de venir aborder avec TSF France la rééducation et la réadaptation dans les maladies neurologiques (NMOSD\, Mogad et Sclérose en plaques (SEP)). Toutes ces maladies se caractérisent par l’apparition de handicaps plus ou moins visibles mais qui ne sont pas définitifs pour la plupart si on peut bénéficier d’une bonne prise en charge. \nVous pourrez profiter d’un échange avec cette spécialiste reconnue de Médecine Physique et de Réadaptation\, cheffe de service au centre spécialisé de Saint-Philibert-de-Lomme. Nous aborderons les aspects pratiques et répondrons à vos questions en direct. \nCe programme est rendu possible grâce au soutien d’Alexion Pharmaceuticals.
URL:https://www.sumairafoundation.org/event/la-reeducation-et-la-recuperation-dans-les-maladies-neurologiques-sep-nmosd-mogad/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/03/Cecile-Donze-1.png
END:VEVENT
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