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X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;TZID=America/New_York:20260919T100000
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UID:22961-1789812000-1789837200@www.sumairafoundation.org
SUMMARY:Michigan Patient Day for Rare Neuroinflammatory & Related Disorders
DESCRIPTION:We’re coming to Michigan!\nAre you or your loved one impacted by: CIDP*\, MG*\, MOGAD*\, or NMOSD*? You’re invited to our event on Saturday\, September 19th. \nJoin us for a day of education\, community and fun to: \n+ Meet local patients\, partners\, care-partners and clinicians+ Ask experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more+ Learn about updates on the latest research and findings from local key opinion leaders \nThis event is being organized in collaboration with Dr. Rosemarie Walch (Memorial Healthcare) and Dr. Lisa Stropp (University of Michigan) and in partnership with MG Holistic Society and Myasthenia Gravis Foundation of Michigan (MGMI). \nRegistration is free and lunch will be served. \nWe can’t wait to see you in Michigan! \nhttps://www.eventbrite.com/e/michigan-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1993976685944?aff=oddtdtcreator \nThe Sumaira Foundation team \n— \nCIDP stands for chronic inflammatory demyelinating polyneuropathy \nMG stands for myasthenia gravis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/michigan-patient-day-for-rare-neuroinflammatory-related-disorders/
LOCATION:University of Michigan-Dearborn\, 4901 Evergreen Rd\, Dearborn\, MI\, 48128\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/1920-X-1080-Michigan-Patient-Day-3.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260926T100000
DTEND;TZID=America/New_York:20260926T170000
DTSTAMP:20260803T185628Z
CREATED:20260720T225449Z
LAST-MODIFIED:20260803T185628Z
UID:22968-1790416800-1790442000@www.sumairafoundation.org
SUMMARY:Miami Patient Day for Rare Neuroinflammatory & Related Disorders
DESCRIPTION:We’re coming to Miami! \nAre you or your loved one impacted by: CIDP*\, MG*\, MOGAD*\, or NMOSD*? You’re invited to our event on Saturday\, September 26th. \nJoin us for a day of education\, community and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with The University of Miami and in partnership with MG Holistic Society. \nRegistration is free and lunch will be served. \nhttps://www.eventbrite.com/e/miami-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1994071513576?aff=oddtdtcreator \nWe can’t wait to see you in Miami! \nThe Sumaira Foundation team \n— \nCIDP stands for chronic inflammatory demyelinating polyneuropathy \nMG stands for myasthenia gravis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/miami-patient-day-for-rare-neuroinflammatory-related-disorders/
LOCATION:16701 Collins Avenue\, Sunny Isles Beach\, Florida 33160\, 16701 Collins Avenue\, Sunny Isles Beach\, FL\, 33160\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/1920-X-1080-Miami-Patient-Day.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260926T100000
DTEND;TZID=America/New_York:20260926T170000
DTSTAMP:20260803T185700Z
CREATED:20260720T225837Z
LAST-MODIFIED:20260803T185700Z
UID:22975-1790416800-1790442000@www.sumairafoundation.org
SUMMARY:Día del Paciente de Miami sobre Trastornos Neuroinflamatorios Raros
DESCRIPTION:¡Nos vemos en Miami! \n¿Usted o un ser querido vive con CIDP*\, MG*\, MOGAD* o NMOSD*? Lo invitamos a acompañarnos en nuestro evento el sábado 26 de septiembre. \nAcompáñenos a disfrutar de un día de educación\, comunidad y convivencia para: \n• Conocer a pacientes\, aliados\, cuidadores y profesionales de la salud de su comunidad.\n• Hacer preguntas en tiempo real a expertos sobre el manejo de los síntomas\, tratamientos\, terapias\, comorbilidades y mucho más.\n• Conocer las últimas investigaciones y los hallazgos más recientes presentados por líderes de opinión de la región. \nEste evento se organiza en colaboración con el University of Miami y en alianza con MG Holistic Society. \nLa inscripción es gratuita y se ofrecerá almuerzo. \nhttps://www.eventbrite.com/e/dia-del-paciente-de-miami-sobre-trastornos-neuroinflamatorios-raros-tickets-1994072435333?aff=oddtdtcreator&keep_tld=true \n¡Estamos deseando verlo en Miami! \nEl equipo de The Sumaira Foundation \n— \nCIDP significa polineuropatía desmielinizante inflamatoria crónica\nMG significa miastenia gravis\nMOGAD significa enfermedad asociada a anticuerpos contra la glicoproteína de oligodendrocitos de la mielina\nNMOSD significa trastorno del espectro de la neuromielitis óptica
URL:https://www.sumairafoundation.org/event/dia-del-paciente-de-miami-sobre-trastornos-neuroinflamatorios-raros/
LOCATION:16701 Collins Avenue\, Sunny Isles Beach\, Florida 33160\, 16701 Collins Avenue\, Sunny Isles Beach\, FL\, 33160\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/1920-X-1080-Miami-Patient-Day-ES.png
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20261205T100000
DTEND;TZID=America/Los_Angeles:20261205T170000
DTSTAMP:20260729T203806Z
CREATED:20260729T203459Z
LAST-MODIFIED:20260729T203806Z
UID:23059-1796464800-1796490000@www.sumairafoundation.org
SUMMARY:LA Patient Day for Rare Neuroinflammatory and Related Disorders
DESCRIPTION:We’re coming to Los Angeles! \nTSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from California & the west coast! \nAre you or your loved one impacted by: AE*\, CIDP*\, MG*\, MOGAD*\, neurosarcoidosis\, or NMOSD*? You’re invited to our event on Saturday\, December 5th. \nJoin us for a day of education\, community and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Lilyana Amezcua and Dr. Masoud Majed (USC). \nRegistration is free and lunch will be served. \nhttps://www.eventbrite.com/e/la-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1989963571611?aff=oddtdtcreator \nWe can’t wait to see you in LA! \nThe Sumaira Foundation team \n— \nAE stands for autoimmune encephalitis \nCIDP stands for chronic inflammatory demyelinating polyneuropathy \nMG stands for myasthenia gravis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/la-patient-day-for-rare-neuroinflammatory-and-related-disorders/
CATEGORIES:Community Event,Patient Days,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/1920-x-1080-LA.png
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