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BEGIN:VEVENT
DTSTART;TZID=Pacific/Honolulu:20260221T110000
DTEND;TZID=Pacific/Honolulu:20260221T170000
DTSTAMP:20260405T165927
CREATED:20260107T153754Z
LAST-MODIFIED:20260128T150925Z
UID:21017-1771671600-1771693200@www.sumairafoundation.org
SUMMARY:TSF's Honolulu Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:Are you or your loved one impacted by MG*\, MOGAD* or NMOSD*?\nTSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Hawaii to join us in Honolulu on Saturday\, February 21st in Honolulu! \nJoin us for a day of education\, community\, and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Natalia Gonzalez Caldito (Hawaii Neuroscience) and Dr. Alexandra Galati (The Queen’s Health Systems) and in partnership with the MG Holistic Society. Registration is free and lunch will be served. We can’t wait to see you in Honolulu! \n\n\n—\n\n\nMG stands for myasthenia gravisMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorderNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/tsfs-honolulu-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:hawaii convention center\, 1801 Kalākaua Ave\, Honolulu\, HI\, 96815\, United States
CATEGORIES:patient days,Patient Days,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/Hawaii-Patient-Day-February-2026-presentation.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260124T100000
DTEND;TZID=America/New_York:20260124T170000
DTSTAMP:20260405T165927
CREATED:20251218T173459Z
LAST-MODIFIED:20260108T173335Z
UID:20879-1769248800-1769274000@www.sumairafoundation.org
SUMMARY:Día del Paciente para Trastornos Neuroinflamatorios Raros - Puerto Rico
DESCRIPTION:¡TSF llega a Puerto Rico el sábado 24 de enero 2026! \nInvitamos a pacientes\, cuidadores\, médicos\, enfermeros\, investigadores y defensores de los pacientes a unirse a nosotros en un día especial dedicado a los trastornos neuroinflamatorios raros. Si usted o un ser querido se ven afectados por alguno de los trastornos que se enumeran a continuación: \n¡Esperamos verlos allí! \n\nEncefalitis autoinmune (EA)\nMOGAD\nNeurosarcoidosis\nNMOSD\nSíndrome de la persona rígida\n\nÚnase a nosotros para un día de aprendizaje\, comunidad y diversión: \n\nPodran conocer a pacientes\, cuidadores y profesionales de la salud de todo Puerto Rico.\nHaga preguntas a expertos en tiempo real sobre el manejo de los síntomas\, tratamientos y terapias\, comorbilidades y mucho más.\nInfórmese sobre las últimas investigaciones y descubrimientos de la mano de expertos.\n\nEste evento se organiza en colaboración con el Dr. José Ávila y la Dra. Patricia De Jesús del Centro de Esclerosis Múltiple de Puerto Rico. La inscripción es gratuita y se servirá almuerzo. \n¡Tenemos muchas ganas de verlos en Puerto Rico! \nLa Fundación Sumaira
URL:https://www.sumairafoundation.org/event/dia-del-paciente-para-trastornos-neuroinflamatorios-raros-puerto-rico/
LOCATION:Hyatt Centric San Juan – Isla Verde\, 8020 José M. Tartak Ave\, Carolina\, Puerto Rico\, 00979\, United States Minor Outlying Islands
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/12/Puerto-Rico-Patient-Day-2026-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251129T130000
DTEND;TZID=Europe/Paris:20251130T130000
DTSTAMP:20260405T165927
CREATED:20250915T142820Z
LAST-MODIFIED:20250915T142820Z
UID:20188-1764421200-1764507600@www.sumairafoundation.org
SUMMARY:3ème week-end Patients et Aidants NMOSD & MOGAD - Lyon
DESCRIPTION:TSF France\, en partenariat avec le MIRCEM\, présente le 3ème week-end Patients et Aidants de la NMOSD et de la MOGAD les 29 et 30 novembre à Lyon ! \nL’évènement\, complétement gratuit\, aura lieu au Mama Shelter de Lyon\, rue Domer\, les 29 et 30 novembre 2025. \nNous sommes ravis d’être accompagnés par les experts du MIRCEM et de nombreux autres intervenants qui nous rejoignent pour ces deux journées d’information. \nVenez rencontrer les acteurs de la NMOSD et la MOGAD\, suivre nos ateliers mais surtout échanger avec d’autres Patients et Aidants qui vivent la même chose que vous. \nVenez mettre en lumière la NMOSD et la MOGAD avec TSF France. \nÀ bientôt! \nL’équipe TSF France (Anass\, Bérengère\, Claire\, Elodie\, Emma\, Fatiha\, Nassima\, Natasha\, Nelly et Selma) \nEnvoyez vos questions à: Berengere@sumairafoundation.org ou guillaume@sumairafoundation.org \nAccès par le métro Station Jean MACE – Parking public à proximité
URL:https://www.sumairafoundation.org/event/3eme-week-end-patients-et-aidants-nmosd-mogad-lyon/
LOCATION:Mama Shelter Lyon\, 13 Rue Domer\, Lyon\, 69007\, France
CATEGORIES:TSF France,TSF Patient Day
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/09/https-cdn.evbuc_.com-images-1121221683-132744545551-1-original.20250911-144625.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251018T110000
DTEND;TZID=America/Los_Angeles:20251018T170000
DTSTAMP:20260405T165927
CREATED:20250822T164117Z
LAST-MODIFIED:20250912T134018Z
UID:20009-1760785200-1760806800@www.sumairafoundation.org
SUMMARY:Seattle Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:We’re coming to Seattle! \nAre you an AE*\, CNS Vasculitis\, MOGAD*\, neurosarcoidosis\, NMOSD* or SPS* patient\, partner\, care-partner\, clinician\, nurse\, researcher and/or advocate from the Pacific Northwest region? You’re invited to our event on Saturday\, October 18th at the UW Medicine Neurosciences Institute. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Shuvro Roy at the UW Medicine Neurosciences Institute\, Dr. Pavle Repovic at Swedish Neuroscience Institute and in partnership with Autoimmune Encephalitis Alliance and The Stiff Person Syndrome Research Foundation. Registration is free and lunch will be served. We can’t wait to see you in Seattle! \n— \nAE stands for autoimmune encephalitis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder \nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/seattle-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:University of Washington\, 4295 Little Canoe Channel NE\, Seattle\, WA\, 98195\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/08/Seattle-Patient-Day-2025-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Phoenix:20250816T110000
DTEND;TZID=America/Phoenix:20250816T170000
DTSTAMP:20260405T165927
CREATED:20250707T190725Z
LAST-MODIFIED:20250805T174323Z
UID:19712-1755342000-1755363600@www.sumairafoundation.org
SUMMARY:TSF's Intermountain West Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:TSF is coming to Salt Lake City! \nAre you an AE*\, CNS Vasculitis\, MOGAD*\, neurosarcoidosis\, NMOSD* or SPS* patient\, caregiver\, clinician\, nurse\, researcher and/or advocate from the Intermountain West region? You’re invited to our event on Saturday\, August 16th at the University of Utah Health. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local AE\, CNS Vasculitis\, MOGAD\, neurosarcoidosis\, NMOSD or SPS patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in SLC! \nThe Sumaira Foundation team \n— \nNMOSD stands for neuromyelitis optica spectrum disorder\nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder\nAE stands for autoimmune encephalitis\nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/tsfs-intermountain-west-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:University of Utah\, UT\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/07/SLC-Presenter-Slides.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250726T110000
DTEND;TZID=America/Chicago:20250726T170000
DTSTAMP:20260405T165927
CREATED:20250605T152456Z
LAST-MODIFIED:20250622T201657Z
UID:19507-1753527600-1753549200@www.sumairafoundation.org
SUMMARY:Chicago Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:Are you an NMOSD*\, MOGAD*\, AE*\, MG* or SPS* patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in the Chicagoland area? You’re invited to our event on Saturday\, July 26th at Rush University Medical Center’s Searle Center. We are proud to collaborate on this event with the Chicago MS Alliance. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD\, MOGAD\, AE\, MG and SPS patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in CHI-town! \nThe Sumaira Foundation team \n— \nNMOSD stands for neuromyelitis optica spectrum disorder \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nAE stands for autoimmune encephalitis \nMG stands for myasthenia gravis \nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/chicago-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:Rush University Medical Center\, 1725 West Harrison Street #5th floor\, Chicago\, IL\, 60612\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/06/Chicago-PD-2025-Presentation-Size.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250608T110000
DTEND;TZID=America/New_York:20250608T170000
DTSTAMP:20260405T165927
CREATED:20250417T140359Z
LAST-MODIFIED:20250417T140359Z
UID:19144-1749380400-1749402000@www.sumairafoundation.org
SUMMARY:TSF's Washington DC Patient Day
DESCRIPTION:TSF is coming to the DMV area! \nAre you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in the Washington D.C./Baltimore area? You’re invited to our event on Sunday\, June 8th\, at 11 AM at the Georgetown University Conference Center. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in the capital of the United States! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-washington-dc-patient-day/
LOCATION:Leavey Center\, 560 Tondorf Road\, Washington\, DC\, 20057\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/04/Washington-DC-Patient-Day-June-2025-2160-x-1080-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241005T110000
DTEND;TZID=America/New_York:20241005T170000
DTSTAMP:20260405T165927
CREATED:20241003T145652Z
LAST-MODIFIED:20241003T145652Z
UID:17873-1728126000-1728147600@www.sumairafoundation.org
SUMMARY:TSF's Miami Patient Day for NMOSD & MOGAD
DESCRIPTION:TSF is coming to Miami! \n\nAre you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in Florida? You’re invited to our event on Saturday\, October 5th at 11 AM at Margaritaville Hollywood Beach Resort. \n  \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\nPLUS! We’ll have an educational and interactive session in Spanish led by local experts.\n\n  \nThis in-person event is free and lunch will be served. We can’t wait to see you in Miami! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-miami-patient-day-for-nmosd-mogad/
LOCATION:Margaritaville Hollywood Beach Resort\, 1111 N Ocean Dr\, Hollywood\, 33019\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/10/457129813_495847449743087_1970028794632479223_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240615T110000
DTEND;TZID=America/New_York:20240615T170000
DTSTAMP:20260405T165927
CREATED:20240416T171719Z
LAST-MODIFIED:20240416T171719Z
UID:16747-1718449200-1718470800@www.sumairafoundation.org
SUMMARY:TSF's Cleveland Patient Day for NMOSD & MOGAD
DESCRIPTION:Are you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in or around Ohio? You’re invited to our special day! \nIn collaboration with Dr. Amy Kunchok\, Dr. Mary Rensel and Dr. Justin Abbatemarco at the Cleveland Clinic\, The Sumaira Foundation is pleased to invite you to TSF’s Cleveland Patient Day\, a special day dedicated to NMOSD & MOGAD patients\, caregivers\, clinicians and researchers. \nJoin us for a day of education\, community\, and fun where you’ll: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis is a free event and lunch will be served. \nWe’re excited to see you in Cleveland! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-cleveland-patient-day-for-nmosd-mogad/
LOCATION:Cleveland Clinic Administrative Campus Building 4\, 3175 Science Park Drive\, Beachwood\, 44122\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/04/https-cdn.evbuc_.com-images-744867119-132744545551-1-original.20240416-153900.jpeg
END:VEVENT
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