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X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;TZID=America/New_York:20260926T100000
DTEND;TZID=America/New_York:20260926T170000
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CREATED:20260720T225449Z
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UID:22968-1790416800-1790442000@www.sumairafoundation.org
SUMMARY:Miami Patient Day for Rare Neuroinflammatory & Related Disorders
DESCRIPTION:We’re coming to Miami! \nAre you or your loved one impacted by: AE*\, CIDP*\, MG*\, MOGAD*\, or NMOSD*? You’re invited to our event on Saturday\, September 26th. \nJoin us for a day of education\, community and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with The University of Miami and in partnership with MG Holistic Society. \nRegistration is free and lunch will be served. \nhttps://www.eventbrite.com/e/miami-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1994071513576?aff=oddtdtcreator \nWe can’t wait to see you in Miami! \nThe Sumaira Foundation team \n— \nAE stands for autoimmune encephalitis \nCIDP stands for chronic inflammatory demyelinating polyneuropathy \nMG stands for myasthenia gravis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/miami-patient-day-for-rare-neuroinflammatory-related-disorders/
LOCATION:16701 Collins Avenue\, Sunny Isles Beach\, Florida 33160\, 16701 Collins Avenue\, Sunny Isles Beach\, FL\, 33160\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/1920-x-1080-Miami-Patient-Day-2026.png
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DTSTART;TZID=America/New_York:20260926T100000
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CREATED:20260720T225837Z
LAST-MODIFIED:20260720T225837Z
UID:22975-1790416800-1790442000@www.sumairafoundation.org
SUMMARY:Día del Paciente de Miami sobre Trastornos Neuroinflamatorios Raros
DESCRIPTION:¡Nos vemos en Miami! \n¿Usted o un ser querido vive con AE*\, CIDP*\, MG*\, MOGAD* o NMOSD*? Lo invitamos a acompañarnos en nuestro evento el sábado 26 de septiembre. \nAcompáñenos a disfrutar de un día de educación\, comunidad y convivencia para: \n• Conocer a pacientes\, aliados\, cuidadores y profesionales de la salud de su comunidad.\n• Hacer preguntas en tiempo real a expertos sobre el manejo de los síntomas\, tratamientos\, terapias\, comorbilidades y mucho más.\n• Conocer las últimas investigaciones y los hallazgos más recientes presentados por líderes de opinión de la región. \nEste evento se organiza en colaboración con el University of Miami y en alianza con MG Holistic Society. \nLa inscripción es gratuita y se ofrecerá almuerzo. \nhttps://www.eventbrite.com/e/dia-del-paciente-de-miami-sobre-trastornos-neuroinflamatorios-raros-tickets-1994072435333?aff=oddtdtcreator&keep_tld=true \n¡Estamos deseando verlo en Miami! \nEl equipo de The Sumaira Foundation \n— \nAE significa encefalitis autoinmune\nCIDP significa polineuropatía desmielinizante inflamatoria crónica\nMG significa miastenia gravis\nMOGAD significa enfermedad asociada a anticuerpos contra la glicoproteína de oligodendrocitos de la mielina\nNMOSD significa trastorno del espectro de la neuromielitis óptica
URL:https://www.sumairafoundation.org/event/dia-del-paciente-de-miami-sobre-trastornos-neuroinflamatorios-raros/
LOCATION:16701 Collins Avenue\, Sunny Isles Beach\, Florida 33160\, 16701 Collins Avenue\, Sunny Isles Beach\, FL\, 33160\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/1920-x-1080-Miami-Patient-Day-2026-1.png
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