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DTSTART;TZID=America/New_York:20260613T110000
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DTSTAMP:20260723T132239
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UID:21848-1781348400-1781373600@www.sumairafoundation.org
SUMMARY:Montreal Patient Day for Rare Neuroinflammatory & Related Disorders
DESCRIPTION:TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Montreal and the province of Quebec! \nWe’re coming to Montreal! \nAre you or your loved one impacted by: CIDP*\, IgG4-RD*\, MG*\, MOGAD* or NMOSD*? You’re invited to our event on Saturday\, June 13th. \nJoin us for a day of education\, community and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis is a bilingual event. The full day will be available in English\, with live translation services for French speakers. In the afternoon\, select panels and discussions will be held in French with French-speaking clinicians and speakers. All attendees—whether English- or French-speaking—will be able to fully participate and enjoy the day. \nThis event is being organized in collaboration with Dr. Adil Harroud (McGill) and in partnership with Muscular Dystrophy Canada and IgG4ward. \nRegistration is free and lunch will be served. We can’t wait to see you in Montreal! \nhttps://www.eventbrite.com/e/1986690663254?aff=oddtdtcreator \nThe Sumaira Foundation team \n— \nCIDP stands for chronic inflammatory demyelinating polyneuropathy \nIgG4-RD stands for immunoglobulin G4-related disease \nMG stands for myasthenia gravis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/montreal-patient-day-for-rare-neuroinflammatory-related-disorders/
LOCATION:Plaza Centre-Ville\, 777 Blvd Robert Bourassa\, Montreal\, Quebec\, H3C3Z7\, Canada
CATEGORIES:Patient Days,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/ENGLISH-WITH-LINK.png
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260620T110000
DTEND;TZID=America/Chicago:20260620T170000
DTSTAMP:20260723T132239
CREATED:20260403T162858Z
LAST-MODIFIED:20260513T180056Z
UID:21638-1781953200-1781974800@www.sumairafoundation.org
SUMMARY:Rochester Patient Day for Rare Neuroinflammatory & Related Disorders
DESCRIPTION:TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Minnesota and the upper Midwest region! \n\n\n\nWe’re coming to Rochester! \nAre you or your loved one impacted by: AE*\, CIDP*\, MG*\, MOGAD*\, NMOSD*\, or SPS*? You’re invited to our event on Saturday\, June 20th. \nJoin us for a day of education\, community and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Eoin Flanigan (Mayo Clinic Rochester) and Dr. John Chen (Mayo Clinic Rochester) and in partnership with Autoimmune Encephalitis Alliance\, MG Holistic Society and The Stiff Person Syndrome Research Foundation. \nRegistration is free and lunch will be served. \nChildcare services will be available throughout the duration of the day. \nWe can’t wait to see you in Rochester! \nhttps://www.eventbrite.com/e/rochester-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1986578610100 \nThe Sumaira Foundation team \n— \nAE stands for autoimmune encephalitis \nCIDP stands for chronic inflammatory demyelinating polyneuropathy \nMG stands for myasthenia gravis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder \nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/rochester-patient-day-for-rare-neuroinflammatory-related-disorders/
LOCATION:Mayo Civic Center\, 30 Civic Center Drive Southeast\, Rochester\, MN\, 55904\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/1920-x-1080-MAYO-CLINIC-Patient-Day-2026-with-link.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260913T090000
DTEND;TZID=America/New_York:20260913T120000
DTSTAMP:20260723T132239
CREATED:20260706T184509Z
LAST-MODIFIED:20260706T184839Z
UID:22788-1789290000-1789300800@www.sumairafoundation.org
SUMMARY:TSF 5K For Rare Neuroimmune Disorders
DESCRIPTION:Turning Miles into Medical Progress – Join us on September 13th for TSF’s 2nd 5K to raise money for research! \nLast year’s inaugural 5K helped fund a groundbreaking AI-powered diagnostic initiative with the potential to transform how rare neuroimmune diseases are identified around the world. \nUsing only a smartphone image\, this technology is being developed to rapidly and accurately analyze diagnostic testing\, helping clinicians detect rare neuroimmune conditions earlier – especially in underserved regions where access to specialized care and testing is limited. Earlier diagnosis can lead to faster treatment\, better outcomes and a greater chance of preventing permanent disability\, vision loss and disease progression. \nWhat started as a community race is now helping drive a global solution that could expand access to life-changing care for patients everywhere. By participating in this year’s 5K\, you are not just supporting awareness; you are directly fueling innovation\, earlier diagnosis and hope for the rare disease community worldwide. \nThis is a family-friendly event – all are welcome (including doggos!) https://runsignup.com/Race/MA/Weston/TSF5KForRareNeuroimmuneDisorders \n\nThis event is being organized by Terry Clark\, NMOSD patient and TSF Ambassador of MA: “As many of you may know\, four years ago\, May 2022\, I was diagnosed with a rare autoimmune disease called NMO. This 5k has been something I’ve wanted to do for awhile so I’m excited to continue organizing this annual race.”
URL:https://www.sumairafoundation.org/event/tsf-5k-forr-are-neuroimmune-disorders/
LOCATION:Weston Town Hall\, 11 Town House Rd\, Weston\, 02493\, United States
CATEGORIES:Community Event,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/TSF-5K-2026.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T100000
DTEND;TZID=America/New_York:20260919T170000
DTSTAMP:20260723T132239
CREATED:20260720T225003Z
LAST-MODIFIED:20260720T225003Z
UID:22961-1789812000-1789837200@www.sumairafoundation.org
SUMMARY:Michigan Patient Day for Rare Neuroinflammatory & Related Disorders
DESCRIPTION:We’re coming to Michigan!\nAre you or your loved one impacted by: CIDP*\, MG*\, MOGAD*\, or NMOSD*? You’re invited to our event on Saturday\, September 19th. \nJoin us for a day of education\, community and fun to: \n+ Meet local patients\, partners\, care-partners and clinicians+ Ask experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more+ Learn about updates on the latest research and findings from local key opinion leaders \nThis event is being organized in collaboration with Dr. Rosemarie Walch (Memorial Healthcare) and Dr. Lisa Stropp (University of Michigan) and in partnership with MG Holistic Society and Myasthenia Gravis Foundation of Michigan(MGMI). \nRegistration is free and lunch will be served. \nWe can’t wait to see you in Michigan! \nhttps://www.eventbrite.com/e/michigan-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1993976685944?aff=oddtdtcreator \nThe Sumaira Foundation team \n— \nCIDP stands for chronic inflammatory demyelinating polyneuropathy \nMG stands for myasthenia gravis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/michigan-patient-day-for-rare-neuroinflammatory-related-disorders/
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/1920-x-1080-Michigan-Patient-Day.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260926T100000
DTEND;TZID=America/New_York:20260926T170000
DTSTAMP:20260723T132239
CREATED:20260720T225449Z
LAST-MODIFIED:20260720T225449Z
UID:22968-1790416800-1790442000@www.sumairafoundation.org
SUMMARY:Miami Patient Day for Rare Neuroinflammatory & Related Disorders
DESCRIPTION:We’re coming to Miami! \nAre you or your loved one impacted by: AE*\, CIDP*\, MG*\, MOGAD*\, or NMOSD*? You’re invited to our event on Saturday\, September 26th. \nJoin us for a day of education\, community and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with The University of Miami and in partnership with MG Holistic Society. \nRegistration is free and lunch will be served. \nhttps://www.eventbrite.com/e/miami-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1994071513576?aff=oddtdtcreator \nWe can’t wait to see you in Miami! \nThe Sumaira Foundation team \n— \nAE stands for autoimmune encephalitis \nCIDP stands for chronic inflammatory demyelinating polyneuropathy \nMG stands for myasthenia gravis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/miami-patient-day-for-rare-neuroinflammatory-related-disorders/
LOCATION:16701 Collins Avenue\, Sunny Isles Beach\, Florida 33160\, 16701 Collins Avenue\, Sunny Isles Beach\, FL\, 33160\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/1920-x-1080-Miami-Patient-Day-2026.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260926T100000
DTEND;TZID=America/New_York:20260926T170000
DTSTAMP:20260723T132239
CREATED:20260720T225837Z
LAST-MODIFIED:20260720T225837Z
UID:22975-1790416800-1790442000@www.sumairafoundation.org
SUMMARY:Día del Paciente de Miami sobre Trastornos Neuroinflamatorios Raros
DESCRIPTION:¡Nos vemos en Miami! \n¿Usted o un ser querido vive con AE*\, CIDP*\, MG*\, MOGAD* o NMOSD*? Lo invitamos a acompañarnos en nuestro evento el sábado 26 de septiembre. \nAcompáñenos a disfrutar de un día de educación\, comunidad y convivencia para: \n• Conocer a pacientes\, aliados\, cuidadores y profesionales de la salud de su comunidad.\n• Hacer preguntas en tiempo real a expertos sobre el manejo de los síntomas\, tratamientos\, terapias\, comorbilidades y mucho más.\n• Conocer las últimas investigaciones y los hallazgos más recientes presentados por líderes de opinión de la región. \nEste evento se organiza en colaboración con el University of Miami y en alianza con MG Holistic Society. \nLa inscripción es gratuita y se ofrecerá almuerzo. \nhttps://www.eventbrite.com/e/dia-del-paciente-de-miami-sobre-trastornos-neuroinflamatorios-raros-tickets-1994072435333?aff=oddtdtcreator&keep_tld=true \n¡Estamos deseando verlo en Miami! \nEl equipo de The Sumaira Foundation \n— \nAE significa encefalitis autoinmune\nCIDP significa polineuropatía desmielinizante inflamatoria crónica\nMG significa miastenia gravis\nMOGAD significa enfermedad asociada a anticuerpos contra la glicoproteína de oligodendrocitos de la mielina\nNMOSD significa trastorno del espectro de la neuromielitis óptica
URL:https://www.sumairafoundation.org/event/dia-del-paciente-de-miami-sobre-trastornos-neuroinflamatorios-raros/
LOCATION:16701 Collins Avenue\, Sunny Isles Beach\, Florida 33160\, 16701 Collins Avenue\, Sunny Isles Beach\, FL\, 33160\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/1920-x-1080-Miami-Patient-Day-2026-1.png
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