TSF's Honolulu Patient Day for Rare Neuroinflammatory Disorders
2026-02-21 11:00 - 17:00 (Pacific/Honolulu) | hawaii convention center, 1801 Kalākaua Ave, Honolulu, HI, 96815, United States
Are you or your loved one impacted by MG*, MOGAD* or NMOSD*?
TSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Hawaii to join us in Honolulu on Saturday, February 21st in Honolulu!
Join us for a day of education, community, and fun to:

Meet local patients, partners, care-partners and clinicians
Ask experts questions in real time about symptom management, treatments and therapies, comorbidities and more
Learn about updates on the latest research and findings from local key opinion leaders

This event is being organized in collaboration with Dr. Natalia Gonzalez Caldito (Hawaii Neuroscience) and Dr. Alexandra Galati (The Queen’s Health Systems) and in partnership with the MG Holistic Society. Registration is free and lunch will be served. We can’t wait to see you in Honolulu!

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MG stands for myasthenia gravisMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorderNMOSD stands for neuromyelitis optica spectrum disorder

Montreal Patient Day for Rare Neuroinflammatory & Related Disorders
2026-06-13 11:00 - 18:00 (America/New_York) | Plaza Centre-Ville, 777 Blvd Robert Bourassa, Montreal, Quebec, H3C3Z7, Canada
TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Montreal and the province of Quebec!
We’re coming to Montreal!
Are you or your loved one impacted by: CIDP*, IgG4-RD*, MG*, MOGAD* or NMOSD*? You’re invited to our event on Saturday, June 13th.
Join us for a day of education, community and fun to:

Meet local patients, partners, care-partners and clinicians
Ask experts questions in real time about symptom management, treatments and therapies, comorbidities and more
Learn about updates on the latest research and findings from local key opinion leaders

This is a bilingual event. The full day will be available in English, with live translation services for French speakers. In the afternoon, select panels and discussions will be held in French with French-speaking clinicians and speakers. All attendees—whether English- or French-speaking—will be able to fully participate and enjoy the day.
This event is being organized in collaboration with Dr. Adil Harroud (McGill) and in partnership with Muscular Dystrophy Canada and IgG4ward.
Registration is free and lunch will be served. We can’t wait to see you in Montreal!
https://www.eventbrite.com/e/1986690663254?aff=oddtdtcreator
The Sumaira Foundation team
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CIDP stands for chronic inflammatory demyelinating polyneuropathy
IgG4-RD stands for immunoglobulin G4-related disease
MG stands for myasthenia gravis
MOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder
NMOSD stands for neuromyelitis optica spectrum disorder

Rochester Patient Day for Rare Neuroinflammatory & Related Disorders
2026-06-20 11:00 - 17:00 (America/Chicago) | Mayo Civic Center, 30 Civic Center Drive Southeast, Rochester, MN, 55904, United States
TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Minnesota and the upper Midwest region!

We’re coming to Rochester!
Are you or your loved one impacted by: AE*, CIDP*, MG*, MOGAD*, NMOSD*, or SPS*? You’re invited to our event on Saturday, June 20th.
Join us for a day of education, community and fun to:

Meet local patients, partners, care-partners and clinicians
Ask experts questions in real time about symptom management, treatments and therapies, comorbidities and more
Learn about updates on the latest research and findings from local key opinion leaders

This event is being organized in collaboration with Dr. Eoin Flanigan (Mayo Clinic Rochester) and Dr. John Chen (Mayo Clinic Rochester) and in partnership with Autoimmune Encephalitis Alliance, MG Holistic Society and The Stiff Person Syndrome Research Foundation.
Registration is free and lunch will be served.
Childcare services will be available throughout the duration of the day.
We can’t wait to see you in Rochester!
https://www.eventbrite.com/e/rochester-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1986578610100
The Sumaira Foundation team
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AE stands for autoimmune encephalitis
CIDP stands for chronic inflammatory demyelinating polyneuropathy
MG stands for myasthenia gravis
MOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder
NMOSD stands for neuromyelitis optica spectrum disorder
SPS stands for stiff person syndrome

TSF 5K For Rare Neuroimmune Disorders
2026-09-13 09:00 - 12:00 (America/New_York) | Weston Town Hall, 11 Town House Rd, Weston, 02493, United States
Turning Miles into Medical Progress – Join us on September 13th for TSF’s 2nd 5K to raise money for research!
Last year’s inaugural 5K helped fund a groundbreaking AI-powered diagnostic initiative with the potential to transform how rare neuroimmune diseases are identified around the world.
Using only a smartphone image, this technology is being developed to rapidly and accurately analyze diagnostic testing, helping clinicians detect rare neuroimmune conditions earlier – especially in underserved regions where access to specialized care and testing is limited. Earlier diagnosis can lead to faster treatment, better outcomes and a greater chance of preventing permanent disability, vision loss and disease progression.
What started as a community race is now helping drive a global solution that could expand access to life-changing care for patients everywhere. By participating in this year’s 5K, you are not just supporting awareness; you are directly fueling innovation, earlier diagnosis and hope for the rare disease community worldwide.
This is a family-friendly event – all are welcome (including doggos!) https://runsignup.com/Race/MA/Weston/TSF5KForRareNeuroimmuneDisorders

This event is being organized by Terry Clark, NMOSD patient and TSF Ambassador of MA: “As many of you may know, four years ago, May 2022, I was diagnosed with a rare autoimmune disease called NMO. This 5k has been something I’ve wanted to do for awhile so I’m excited to continue organizing this annual race.”

Michigan Patient Day for Rare Neuroinflammatory & Related Disorders
2026-09-19 10:00 - 17:00 (America/New_York)
We’re coming to Michigan!
Are you or your loved one impacted by: CIDP*, MG*, MOGAD*, or NMOSD*? You’re invited to our event on Saturday, September 19th.
Join us for a day of education, community and fun to:
+ Meet local patients, partners, care-partners and clinicians+ Ask experts questions in real time about symptom management, treatments and therapies, comorbidities and more+ Learn about updates on the latest research and findings from local key opinion leaders
This event is being organized in collaboration with Dr. Rosemarie Walch (Memorial Healthcare) and Dr. Lisa Stropp (University of Michigan) and in partnership with MG Holistic Society and Myasthenia Gravis Foundation of Michigan(MGMI).
Registration is free and lunch will be served.
We can’t wait to see you in Michigan!
https://www.eventbrite.com/e/michigan-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1993976685944?aff=oddtdtcreator
The Sumaira Foundation team
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CIDP stands for chronic inflammatory demyelinating polyneuropathy
MG stands for myasthenia gravis
MOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder
NMOSD stands for neuromyelitis optica spectrum disorder

Miami Patient Day for Rare Neuroinflammatory & Related Disorders
2026-09-26 10:00 - 17:00 (America/New_York) | 16701 Collins Avenue, Sunny Isles Beach, Florida 33160, 16701 Collins Avenue, Sunny Isles Beach, FL, 33160, United States
We’re coming to Miami!
Are you or your loved one impacted by: AE*, CIDP*, MG*, MOGAD*, or NMOSD*? You’re invited to our event on Saturday, September 26th.
Join us for a day of education, community and fun to:

Meet local patients, partners, care-partners and clinicians
Ask experts questions in real time about symptom management, treatments and therapies, comorbidities and more
Learn about updates on the latest research and findings from local key opinion leaders

This event is being organized in collaboration with The University of Miami and in partnership with MG Holistic Society.
Registration is free and lunch will be served.
https://www.eventbrite.com/e/miami-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1994071513576?aff=oddtdtcreator
We can’t wait to see you in Miami!
The Sumaira Foundation team
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AE stands for autoimmune encephalitis
CIDP stands for chronic inflammatory demyelinating polyneuropathy
MG stands for myasthenia gravis
MOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder
NMOSD stands for neuromyelitis optica spectrum disorder

Día del Paciente de Miami sobre Trastornos Neuroinflamatorios Raros
2026-09-26 10:00 - 17:00 (America/New_York) | 16701 Collins Avenue, Sunny Isles Beach, Florida 33160, 16701 Collins Avenue, Sunny Isles Beach, FL, 33160, United States
¡Nos vemos en Miami!
¿Usted o un ser querido vive con AE*, CIDP*, MG*, MOGAD* o NMOSD*? Lo invitamos a acompañarnos en nuestro evento el sábado 26 de septiembre.
Acompáñenos a disfrutar de un día de educación, comunidad y convivencia para:
• Conocer a pacientes, aliados, cuidadores y profesionales de la salud de su comunidad.
• Hacer preguntas en tiempo real a expertos sobre el manejo de los síntomas, tratamientos, terapias, comorbilidades y mucho más.
• Conocer las últimas investigaciones y los hallazgos más recientes presentados por líderes de opinión de la región.
Este evento se organiza en colaboración con el University of Miami y en alianza con MG Holistic Society.
La inscripción es gratuita y se ofrecerá almuerzo.
https://www.eventbrite.com/e/dia-del-paciente-de-miami-sobre-trastornos-neuroinflamatorios-raros-tickets-1994072435333?aff=oddtdtcreator&keep_tld=true
¡Estamos deseando verlo en Miami!
El equipo de The Sumaira Foundation
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AE significa encefalitis autoinmune
CIDP significa polineuropatía desmielinizante inflamatoria crónica
MG significa miastenia gravis
MOGAD significa enfermedad asociada a anticuerpos contra la glicoproteína de oligodendrocitos de la mielina
NMOSD significa trastorno del espectro de la neuromielitis óptica
