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DTSTART;TZID=America/New_York:20260124T100000
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UID:20879-1769248800-1769274000@www.sumairafoundation.org
SUMMARY:Día del Paciente para Trastornos Neuroinflamatorios Raros - Puerto Rico
DESCRIPTION:¡TSF llega a Puerto Rico el sábado 24 de enero 2026! \nInvitamos a pacientes\, cuidadores\, médicos\, enfermeros\, investigadores y defensores de los pacientes a unirse a nosotros en un día especial dedicado a los trastornos neuroinflamatorios raros. Si usted o un ser querido se ven afectados por alguno de los trastornos que se enumeran a continuación: \n¡Esperamos verlos allí! \n\nEncefalitis autoinmune (EA)\nMOGAD\nNeurosarcoidosis\nNMOSD\nSíndrome de la persona rígida\n\nÚnase a nosotros para un día de aprendizaje\, comunidad y diversión: \n\nPodran conocer a pacientes\, cuidadores y profesionales de la salud de todo Puerto Rico.\nHaga preguntas a expertos en tiempo real sobre el manejo de los síntomas\, tratamientos y terapias\, comorbilidades y mucho más.\nInfórmese sobre las últimas investigaciones y descubrimientos de la mano de expertos.\n\nEste evento se organiza en colaboración con el Dr. José Ávila y la Dra. Patricia De Jesús del Centro de Esclerosis Múltiple de Puerto Rico. La inscripción es gratuita y se servirá almuerzo. \n¡Tenemos muchas ganas de verlos en Puerto Rico! \nLa Fundación Sumaira
URL:https://www.sumairafoundation.org/event/dia-del-paciente-para-trastornos-neuroinflamatorios-raros-puerto-rico/
LOCATION:Hyatt Centric San Juan – Isla Verde\, 8020 José M. Tartak Ave\, Carolina\, Puerto Rico\, 00979\, United States Minor Outlying Islands
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/12/Puerto-Rico-Patient-Day-2026-1.png
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BEGIN:VEVENT
DTSTART;TZID=Pacific/Honolulu:20260221T110000
DTEND;TZID=Pacific/Honolulu:20260221T170000
DTSTAMP:20260425T234206
CREATED:20260107T153754Z
LAST-MODIFIED:20260128T150925Z
UID:21017-1771671600-1771693200@www.sumairafoundation.org
SUMMARY:TSF's Honolulu Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:Are you or your loved one impacted by MG*\, MOGAD* or NMOSD*?\nTSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Hawaii to join us in Honolulu on Saturday\, February 21st in Honolulu! \nJoin us for a day of education\, community\, and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Natalia Gonzalez Caldito (Hawaii Neuroscience) and Dr. Alexandra Galati (The Queen’s Health Systems) and in partnership with the MG Holistic Society. Registration is free and lunch will be served. We can’t wait to see you in Honolulu! \n\n\n—\n\n\nMG stands for myasthenia gravisMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorderNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/tsfs-honolulu-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:hawaii convention center\, 1801 Kalākaua Ave\, Honolulu\, HI\, 96815\, United States
CATEGORIES:Patient Days,patient days,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/Hawaii-Patient-Day-February-2026-presentation.png
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DTSTART;TZID=America/Chicago:20260620T110000
DTEND;TZID=America/Chicago:20260620T170000
DTSTAMP:20260425T234206
CREATED:20260403T162858Z
LAST-MODIFIED:20260408T145141Z
UID:21638-1781953200-1781974800@www.sumairafoundation.org
SUMMARY:Rochester Patient Day for Rare Neuroinflammatory & Related Disorders
DESCRIPTION:TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Minnesota and the upper Midwest region! \n\n\n\n\nWe’re coming to Rochester! \nAre you or your loved one impacted by: AE*\, CIDP*\, CNS Vasculitis*\, MG*\, MOGAD*\, neurosarcoidosis\, NMOSD*\, or SPS*? You’re invited to our event on Saturday\, June 20th. \nJoin us for a day of education\, community and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Eoin Flanigan (Mayo Clinic Rochester) and Dr. John Chen (Mayo Clinic Rochester) and in partnership with Autoimmune Encephalitis Alliance\, MG Holistic Society and The Stiff Person Syndrome Research Foundation. \nRegistration is free and lunch will be served. We can’t wait to see you in Rochester! \nhttps://www.eventbrite.com/e/rochester-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1986578610100 \nThe Sumaira Foundation team \n— \nAE stands for autoimmune encephalitis \nCIDP stands for chronic inflammatory demyelinating polyneuropathy \nCNS Vasculitis stands for central nervous system vasculitis \nMG stands for myasthenia gravis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder \nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/rochester-patient-day-for-rare-neuroinflammatory-related-disorders/
LOCATION:Mayo Civic Center\, 30 Civic Center Drive Southeast\, Rochester\, MN\, 55904\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/1920-x-1080-MAYO-CLINIC-Patient-Day-2026-1-1.png
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