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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251108T110000
DTEND;TZID=America/New_York:20251108T170000
DTSTAMP:20260405T144452
CREATED:20250930T184424Z
LAST-MODIFIED:20251008T032147Z
UID:20250-1762599600-1762621200@www.sumairafoundation.org
SUMMARY:Toronto Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:We’re coming to Toronto! \nAre you an AE*\, MG*\, MOGAD* or NMOSD* patient\, partner\, care-partner\, clinician\, nurse\, researcher and/or advocate in Canada? You’re invited to our event on Saturday\, November 8th. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Dalia Rotstein at the University of Toronto\, Dr. Ann Yeh from SickKids and in partnership with Muscular Dystrophy Canada. \nRegistration is free and lunch will be served. We can’t wait to see you in Toronto! \nThe Sumaira Foundation team \n\n\n— \nAE stands for autoimmune encephalitis\nMG stands for myasthenia gravis\nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder\nNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/toronto-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:The Conference Centre at the OBA\, 20 Toronto Street Toronto\, ON\, M5C 2B8\, Canada
CATEGORIES:Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/09/Toronto-Patient-Day-1920x1080-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20251122T123000
DTEND;TZID=Europe/Rome:20251122T193000
DTSTAMP:20260405T144452
CREATED:20250923T185141Z
LAST-MODIFIED:20251014T165913Z
UID:20228-1763814600-1763839800@www.sumairafoundation.org
SUMMARY:3° Giornata dedicata da malattie neuroimmunologiche rare - Roma
DESCRIPTION:TSF Italia è lieta di invitare tutti i pazienti italiani affetti da encefalite autoimmune\, miastenia grave\, MOGAD e NMOSD\, i loro caregiver e i medici interessati a queste patologie a partecipare a questa giornata di formazione\, convivialità e divertimento. \nIn collaborazione con il Dott. Raffaele Iorio del Policlinico Universitario Agostino Gemelli e in partnership con l’Associazione Italiana Miastenia (AIM)\, TSF Italia è lieta di invitarvi alla 3° Giornata dedicata a pazienti\, caregiver e medici. \n\n\nQuesto evento a libera iscrizione vi permetterà di: \n\nIncontrare pazienti italiani \, i loro caregivers ed i clinici esperti di queste patologie\nPorre domande agli esperti in diretta relative alla gestione dei sintomi\, le terapie\, le comorbidità e molto altro\nAggiornarvi in merito alle ultime ricerche scientifiche con l’aiuto di medici esperti italiani\nFare rete e instaurare connessioni con la comunità locale\n\nL’evento è gratuito e il pranzo sarà offerto da noi.
URL:https://www.sumairafoundation.org/event/3-giornata-dedicata-da-malattie-neuroimmunologiche-rare-roma/
LOCATION:Nazionale Spazio Eventi (Roma)\, Via Palermo\, 10\, Roma\, 00184\, Italy
CATEGORIES:Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/09/Rome-Patient-Day-2025-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251129T130000
DTEND;TZID=Europe/Paris:20251130T130000
DTSTAMP:20260405T144452
CREATED:20250915T142820Z
LAST-MODIFIED:20250915T142820Z
UID:20188-1764421200-1764507600@www.sumairafoundation.org
SUMMARY:3ème week-end Patients et Aidants NMOSD & MOGAD - Lyon
DESCRIPTION:TSF France\, en partenariat avec le MIRCEM\, présente le 3ème week-end Patients et Aidants de la NMOSD et de la MOGAD les 29 et 30 novembre à Lyon ! \nL’évènement\, complétement gratuit\, aura lieu au Mama Shelter de Lyon\, rue Domer\, les 29 et 30 novembre 2025. \nNous sommes ravis d’être accompagnés par les experts du MIRCEM et de nombreux autres intervenants qui nous rejoignent pour ces deux journées d’information. \nVenez rencontrer les acteurs de la NMOSD et la MOGAD\, suivre nos ateliers mais surtout échanger avec d’autres Patients et Aidants qui vivent la même chose que vous. \nVenez mettre en lumière la NMOSD et la MOGAD avec TSF France. \nÀ bientôt! \nL’équipe TSF France (Anass\, Bérengère\, Claire\, Elodie\, Emma\, Fatiha\, Nassima\, Natasha\, Nelly et Selma) \nEnvoyez vos questions à: Berengere@sumairafoundation.org ou guillaume@sumairafoundation.org \nAccès par le métro Station Jean MACE – Parking public à proximité
URL:https://www.sumairafoundation.org/event/3eme-week-end-patients-et-aidants-nmosd-mogad-lyon/
LOCATION:Mama Shelter Lyon\, 13 Rue Domer\, Lyon\, 69007\, France
CATEGORIES:TSF France,TSF Patient Day
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/09/https-cdn.evbuc_.com-images-1121221683-132744545551-1-original.20250911-144625.jpeg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260124T100000
DTEND;TZID=America/New_York:20260124T170000
DTSTAMP:20260405T144452
CREATED:20251218T173459Z
LAST-MODIFIED:20260108T173335Z
UID:20879-1769248800-1769274000@www.sumairafoundation.org
SUMMARY:Día del Paciente para Trastornos Neuroinflamatorios Raros - Puerto Rico
DESCRIPTION:¡TSF llega a Puerto Rico el sábado 24 de enero 2026! \nInvitamos a pacientes\, cuidadores\, médicos\, enfermeros\, investigadores y defensores de los pacientes a unirse a nosotros en un día especial dedicado a los trastornos neuroinflamatorios raros. Si usted o un ser querido se ven afectados por alguno de los trastornos que se enumeran a continuación: \n¡Esperamos verlos allí! \n\nEncefalitis autoinmune (EA)\nMOGAD\nNeurosarcoidosis\nNMOSD\nSíndrome de la persona rígida\n\nÚnase a nosotros para un día de aprendizaje\, comunidad y diversión: \n\nPodran conocer a pacientes\, cuidadores y profesionales de la salud de todo Puerto Rico.\nHaga preguntas a expertos en tiempo real sobre el manejo de los síntomas\, tratamientos y terapias\, comorbilidades y mucho más.\nInfórmese sobre las últimas investigaciones y descubrimientos de la mano de expertos.\n\nEste evento se organiza en colaboración con el Dr. José Ávila y la Dra. Patricia De Jesús del Centro de Esclerosis Múltiple de Puerto Rico. La inscripción es gratuita y se servirá almuerzo. \n¡Tenemos muchas ganas de verlos en Puerto Rico! \nLa Fundación Sumaira
URL:https://www.sumairafoundation.org/event/dia-del-paciente-para-trastornos-neuroinflamatorios-raros-puerto-rico/
LOCATION:Hyatt Centric San Juan – Isla Verde\, 8020 José M. Tartak Ave\, Carolina\, Puerto Rico\, 00979\, United States Minor Outlying Islands
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/12/Puerto-Rico-Patient-Day-2026-1.png
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BEGIN:VEVENT
DTSTART;TZID=Pacific/Honolulu:20260221T110000
DTEND;TZID=Pacific/Honolulu:20260221T170000
DTSTAMP:20260405T144452
CREATED:20260107T153754Z
LAST-MODIFIED:20260128T150925Z
UID:21017-1771671600-1771693200@www.sumairafoundation.org
SUMMARY:TSF's Honolulu Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:Are you or your loved one impacted by MG*\, MOGAD* or NMOSD*?\nTSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Hawaii to join us in Honolulu on Saturday\, February 21st in Honolulu! \nJoin us for a day of education\, community\, and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Natalia Gonzalez Caldito (Hawaii Neuroscience) and Dr. Alexandra Galati (The Queen’s Health Systems) and in partnership with the MG Holistic Society. Registration is free and lunch will be served. We can’t wait to see you in Honolulu! \n\n\n—\n\n\nMG stands for myasthenia gravisMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorderNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/tsfs-honolulu-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:hawaii convention center\, 1801 Kalākaua Ave\, Honolulu\, HI\, 96815\, United States
CATEGORIES:patient days,Patient Days,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/Hawaii-Patient-Day-February-2026-presentation.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260620T110000
DTEND;TZID=America/Chicago:20260620T170000
DTSTAMP:20260405T144452
CREATED:20260403T162858Z
LAST-MODIFIED:20260403T162858Z
UID:21638-1781953200-1781974800@www.sumairafoundation.org
SUMMARY:Rochester Patient Day for Rare Neuroinflammatory & Related Disorders
DESCRIPTION:TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Minnesota and the upper Midwest region! \n\n\n\n\nWe’re coming to Rochester! \nAre you or your loved one impacted by: AE*\, CIDP*\, CNS Vasculitis*\, MG*\, MOGAD*\, neurosarcoidosis\, NMOSD*\, or SPS*? You’re invited to our event on Saturday\, June 20th. \nJoin us for a day of education\, community and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Eoin Flanigan (Mayo Clinic Rochester) and Dr. John Chen (Mayo Clinic Rochester) and in partnership with Autoimmune Encephalitis Alliance\, MG Holistic Society and The Stiff Person Syndrome Research Foundation. \nRegistration is free and lunch will be served. We can’t wait to see you in Rochester! \nhttps://www.eventbrite.com/e/rochester-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1986578610100 \nThe Sumaira Foundation team \n— \nAE stands for autoimmune encephalitis \nCIDP stands for chronic inflammatory demyelinating polyneuropathy \nCNS Vasculitis stands for central nervous system vasculitis \nMG stands for myasthenia gravis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder \nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/rochester-patient-day-for-rare-neuroinflammatory-related-disorders/
LOCATION:Mayo Civic Center\, 30 Civic Center Drive Southeast\, Rochester\, MN\, 55904\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/1920-x-1080-MAYO-CLINIC-Patient-Day-2026-.png
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