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DTSTART;TZID=Europe/Rome:20241207T110000
DTEND;TZID=Europe/Rome:20241207T170000
DTSTAMP:20260518T152300
CREATED:20241031T141605Z
LAST-MODIFIED:20241031T150931Z
UID:18260-1733569200-1733590800@www.sumairafoundation.org
SUMMARY:2° Giornata dedicata ai pazienti con NMOSD e MOGAD - Verona
DESCRIPTION:TSF è lieta di invitare tutti i pazienti italiani con NMOSD e MOGAD\, i loro caregivers\, ed i medici interessati a queste patologie a partecipare a questa giornata di formazione\, unione e divertimento. \nIn collaborazione con la Dr.ssa Sara Mariotto dell’ Università di Verona\, The Sumaira Foundation è lieta di invitarvi alla 2° Giornata per pazienti\, caregivers e clinici dedicata a NMOSD e MOGAD. \nQuesto evento a libera iscrizione vi permetterà di: \n\n\nIncontrare pazienti italiani con NMOSD e MOGAD\, i loro caregivers ed i clinici esperti di queste patologie \n\n\n\n\nPorre domande agli esperti in diretta relative alla gestione dei sintomi\, le terapie\, le comorbidità e molto altro \n\n\n\n\nAggiornarvi in merito alle ultime ricerche scientifiche con l’aiuto di medici esperti italiani \n\n\n\n\nFare rete e instaurare connessioni con la comunità locale dedicata a NMOSD e MOGAD \n\n\nIl pranzo e il calore di TSF sono inclusi! \nNon vediamo l’ora di incontrarvi! \nTSF Italia
URL:https://www.sumairafoundation.org/event/2-giornata-dedicata-ai-pazienti-con-nmosd-e-mogad-verona/
LOCATION:Crowne Plaza Verona – Fiera\, 16 Via Belgio 37135\, Verona\, Italy
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/2nd-Verona-Patient-Day-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241123T130000
DTEND;TZID=Europe/Paris:20241124T120000
DTSTAMP:20260518T152300
CREATED:20241031T143425Z
LAST-MODIFIED:20241031T143425Z
UID:18265-1732366800-1732449600@www.sumairafoundation.org
SUMMARY:Le 2ème week-end des patients et aidants de la NMOSD & de la MOGAD - Paris
DESCRIPTION:Suite au succès de notre 1ère Journée Patients NMOSD & MOGAD\, nous renouvelons l’évènement les 23 et 24 novembre à Paris ! \nVenez rencontrer des experts\, suivre nos ateliers\, rencontrer les différents acteurs de la NMOSD et la MOGAD. \nVenez mettre en lumière la NMOSD et la MOGAD avec Sumaira et TSF France. \nÀ bientôt! \nL’équipe TSF France (Anass\, Bérengère\, Elodie\, Emma\, Fatiha\, Nelly et Selma)
URL:https://www.sumairafoundation.org/event/le-2eme-week-end-des-patients-et-aidants-de-la-nmosd-de-la-mogad-paris/
LOCATION:FIAP Paris\, 30 Rue Cabanis\, Paris\, 75014\, France
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/2nd-Paris-Patient-Day-Eventbrite.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241005T110000
DTEND;TZID=America/New_York:20241005T170000
DTSTAMP:20260518T152300
CREATED:20241003T145652Z
LAST-MODIFIED:20241003T145652Z
UID:17873-1728126000-1728147600@www.sumairafoundation.org
SUMMARY:TSF's Miami Patient Day for NMOSD & MOGAD
DESCRIPTION:TSF is coming to Miami! \n\nAre you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in Florida? You’re invited to our event on Saturday\, October 5th at 11 AM at Margaritaville Hollywood Beach Resort. \n  \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\nPLUS! We’ll have an educational and interactive session in Spanish led by local experts.\n\n  \nThis in-person event is free and lunch will be served. We can’t wait to see you in Miami! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-miami-patient-day-for-nmosd-mogad/
LOCATION:Margaritaville Hollywood Beach Resort\, 1111 N Ocean Dr\, Hollywood\, 33019\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/10/457129813_495847449743087_1970028794632479223_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Berlin:20241002T100000
DTEND;TZID=Europe/Berlin:20241002T170000
DTSTAMP:20260518T152300
CREATED:20240812T134906Z
LAST-MODIFIED:20240812T134906Z
UID:17708-1727863200-1727888400@www.sumairafoundation.org
SUMMARY:NEMOS Patient:innentag 2024
DESCRIPTION:Expert:innen informieren über Diagnose und Therapie derNMOSD (Neuromyelitis optica-Spektrum-Erkrankungen) und MOGAD\n(MOG-Antikörpervermittelte Erkrankungen). \nNatürlich besteht ausgiebig Möglichkeit für Fragen und für den Austausch mit anderen Betroffenen.
URL:https://www.sumairafoundation.org/event/nemos-patientinnentag-2024/
LOCATION:Frankfurt am Main\, Otto-Fleck-Schneise 4\, 60528 Frankfurt am Main\, Germany
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/Untitled-design.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Copenhagen:20240920T150000
DTEND;TZID=Europe/Copenhagen:20240920T180000
DTSTAMP:20260518T152300
CREATED:20240607T133117Z
LAST-MODIFIED:20240607T133117Z
UID:17220-1726844400-1726855200@www.sumairafoundation.org
SUMMARY:ECTRIMS Patient Community Day
DESCRIPTION:Join us on 20 September 2024 for ECTRIMS Patient Community Day – an exclusive\, free event designed for individuals living with MOGAD\, MS\, NMOSD and related neurological conditions. \n  \nPatient Community Day is an opportunity to learn about the latest research advancements directly impacting your ongoing care and treatment options. The programme will include engaging roundtable discussions led by international experts\, insightful Q&A sessions\, and a multilingual experience ensuring accessibility for all. \n  \nThis event is FREE to attend. Pre-registration is required. It will be held in English\, with live translations in 50+ languages! \n  \nHave a research question about your condition that you would like answered during the event? As part of the interactive nature of the event\, we invite you to actively participate in our #ECTRIMS4me campaign. Your questions and concerns will shape the agenda\, making this event a true reflection of community-driven support and advocacy. \n  \nSend in your question  https://bit.ly/4562FhC \n  \nJoin us as we push the boundaries of knowledge and forge a stronger path toward collective support and well-being.
URL:https://www.sumairafoundation.org/event/ectrims-patient-community-day/
LOCATION:Bella Center Copenhagen\, Entrance B0\, Emma Gads Vej 43\, 2300 Copenhagen S\, Copenhagen\, Denmark
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/06/1820-1024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240721T110000
DTEND;TZID=America/New_York:20240721T170000
DTSTAMP:20260518T152300
CREATED:20240611T180014Z
LAST-MODIFIED:20240611T180014Z
UID:17260-1721559600-1721581200@www.sumairafoundation.org
SUMMARY:TSF's Atlanta Patient Day for NMOSD & MOGAD
DESCRIPTION:Are you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in or around Georgia? You’re invited to our special day on Sunday\, July 21st at 11 AM at Emory Brain Health Center. \nIn collaboration with Dr. Grace Gombolay & Dr. Spencer Hutto (Emory) and Dr. Mitzi Joi Williams (Joi Life Wellness)\, The Sumaira Foundation is pleased to invite you to TSF’s Atlanta Patient Day\, a special day dedicated to NMOSD & MOGAD patients\, caregivers\, clinicians and researchers. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis is a free event and lunch will be served. We’re excited to see you in Atlanta! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-atlanta-patient-day-for-nmosd-mogad/
LOCATION:Emory Brain Health Center\, 12 Executive Park Dr NE\, Atlana\, 30329\, United States
CATEGORIES:Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/06/Atlanta-Patient-Day-July-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240615T110000
DTEND;TZID=America/New_York:20240615T170000
DTSTAMP:20260518T152300
CREATED:20240416T171719Z
LAST-MODIFIED:20240416T171719Z
UID:16747-1718449200-1718470800@www.sumairafoundation.org
SUMMARY:TSF's Cleveland Patient Day for NMOSD & MOGAD
DESCRIPTION:Are you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in or around Ohio? You’re invited to our special day! \nIn collaboration with Dr. Amy Kunchok\, Dr. Mary Rensel and Dr. Justin Abbatemarco at the Cleveland Clinic\, The Sumaira Foundation is pleased to invite you to TSF’s Cleveland Patient Day\, a special day dedicated to NMOSD & MOGAD patients\, caregivers\, clinicians and researchers. \nJoin us for a day of education\, community\, and fun where you’ll: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis is a free event and lunch will be served. \nWe’re excited to see you in Cleveland! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-cleveland-patient-day-for-nmosd-mogad/
LOCATION:Cleveland Clinic Administrative Campus Building 4\, 3175 Science Park Drive\, Beachwood\, 44122\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/04/https-cdn.evbuc_.com-images-744867119-132744545551-1-original.20240416-153900.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240309T110000
DTEND;TZID=America/New_York:20240309T170000
DTSTAMP:20260518T152300
CREATED:20240116T165451Z
LAST-MODIFIED:20240116T165451Z
UID:15975-1709982000-1710003600@www.sumairafoundation.org
SUMMARY:TSF's New England Patient Day for NMOSD & MOGAD
DESCRIPTION:Are you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in New England? You’re invited! \nIn collaboration with Dr. Michael Levy at Mass General Hospital\, The Sumaira Foundation is pleased to invite you to TSF’s New England Patient Day\, a special day dedicated to NMOSD & MOGAD patients\, caregivers\, clinicians and researchers. \nJoin us for a day of education\, community\, and fun where you’ll: \n\nMeet NMOSD & MOGAD patients\, caregivers and clinicians from New England\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\n\nMake connections and engage in meaningful discussions with the local NMOSD/MOGAD community\n\nThis is a free event and lunch will be served. \nWe’re excited to meet you! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-new-england-patient-day-for-nmosd-mogad/
LOCATION:Mass General Brigham\, 399 Revolution Drive\, Somerville\, MA\, 02145\, United States
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/01/New-England-Patient-Day-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231216
DTEND;VALUE=DATE:20231218
DTSTAMP:20260518T152300
CREATED:20230921T193524Z
LAST-MODIFIED:20231031T120656Z
UID:14790-1702684800-1702857599@www.sumairafoundation.org
SUMMARY:Journée des patients et aidants pour NMOSD & MOGAD - Paris
DESCRIPTION:Vous êtes invités à rejoindre la 1ère Journée Patients NMOSD & MOGAD de TSF France à Paris!\n\n\nVenez rencontrer des experts\, suivre nos ateliers\, rencontrer les différents acteurs de NMOSD et de MOGAD. Venez mettre en lumière la NMOSD et la MOGAD avec Sumaira et TSF France.\n\n\nPour vous inscrire\, visitez www.tinyurl.com/TSFParis\n\n\nÉvénement gratuit organisé par TSF France avec le soutien de Horizon Therapeutics\, Alexion Pharmaceuticals et UCB.\n\n\nÀ bientôt!\nThe Sumaira Foundation France (Bérengère\, Fatiha\, Elodie\, Nelly et Emma)
URL:https://www.sumairafoundation.org/event/journee-des-patients-et-aidants-pour-nmosd-mogad-paris/
LOCATION:Villa Lemons\, 5 Impasse Mousset\, Paris\, 75012\, France
CATEGORIES:Patient Days,TSF France
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/09/12.16.2023.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231029T110000
DTEND;TZID=America/New_York:20231029T170000
DTSTAMP:20260518T152300
CREATED:20230921T194947Z
LAST-MODIFIED:20230921T194947Z
UID:14795-1698577200-1698598800@www.sumairafoundation.org
SUMMARY:TSF's New York City Patient Day for NMOSD & MOGAD
DESCRIPTION:The Sumaira Foundation is pleased to invite you to TSF’s New York City Patient Day\, a day exclusively dedicated to NMOSD & MOGAD patients\, caregivers and clinicians. \nJoin us for a day of education\, community\, and fun where you’ll \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians from and around New York City\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\nMake connections and engage in meaningful discussions with the local NMOSD/MOGAD community\n\nPLUS! We’ll be joined by special guest and celebrity chef\, Christine Ha! Christine was diagnosed with NMOSD after experiencing severe vision loss in 2003. Christine was the first blind contestant to ever appear on MasterChef and the winner of its third season in 2012. In 2023\, Christine is a proud chef\, writer\, TV host and NMOSD advocate. \nThis is a free event brought to you by The Sumaira Foundation in collaboration with the Siegel Rare Neuroimmune Association (SRNA). Lunch and hugs will be served! \nWe’re excited to meet you! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-new-york-city-patient-day-for-nmosd-mogad/
LOCATION:Low Memorial Library\, 535 W. 116th St\, New York\, New York\, 10027\, United States
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/09/NYC-Patient-Day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231028
DTEND;VALUE=DATE:20231029
DTSTAMP:20260518T152300
CREATED:20231019T171421Z
LAST-MODIFIED:20231019T173956Z
UID:15022-1698451200-1698537599@www.sumairafoundation.org
SUMMARY:Dia de la NMO 2023: Argentina
DESCRIPTION:La Asociación de Lucha contra la Esclerosis Múltiple (ALCEM)\, La Fundación Sumaira y NMO Argentina convocan a la actividad a realizarse el 28 de octubre de manera virtual y con inscripción previa. Su finalidad es ampliar información sobre esta rara patología y proporcionar formación sobre el tema. Está dirigido a profesionales de la salud\, pacientes y público interesado. \nEste evento será coordinado por los neurólogos Edgar Carnero Contentti y Verónica Tkachuk\, expertos en trastorno del espectro NMO. Además\, contará con la participación de profesionales argentinos especializados e invitados internacionales\, quienes abordarán temas relacionados con el diagnóstico\, tratamiento de síntomas\, nuevos tratamientos y futuro de la enfermedad\, entre otros. \nLa neuromielitis óptica es una patología desmielinizante autoinmune que afecta a los nervios ópticos y a la médula espinal mediante inflamación. El neurólogo francés Eugene Devic fue quien la describió inicialmente en el año 1894 en la ciudad de Lyon\, en su honor\, se conmemora esta enfermedad el 24 de octubre\, fecha de su nacimiento. \nEntre los síntomas más frecuentes se encuentran: disminución de la agudeza visual\, dolor crónico\, trastorno del sueño\, fatiga\, déficit neurológico\, trastornos sexuales\, entre otros. \nDesde ALCEM acompañan a pacientes con este tipo de enfermedades y resaltan la importancia de brindar información y capacitación sobre este tipo de patologías neurológicas\, ya que un diagnóstico oportuno puede permitir a los pacientes tener una buena calidad de vida.
URL:https://www.sumairafoundation.org/event/dia-de-la-nmo-2023-argentina/
CATEGORIES:Community Event,Partner Events,Patient Days
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/10/RjrvaKQN5jEC9GZ565nXzGg93G2e2QsSz9BW8uEX.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230722T110000
DTEND;TZID=America/Los_Angeles:20230722T180000
DTSTAMP:20260518T152300
CREATED:20230607T164923Z
LAST-MODIFIED:20230607T164923Z
UID:13853-1690023600-1690048800@www.sumairafoundation.org
SUMMARY:TSF's Southern California Patient Day for NMOSD & MOGAD
DESCRIPTION:The Sumaira Foundation is pleased to invite you to TSF’s Southern California Patient Day\, a special day dedicated to NMOSD & MOGAD patients\, caregivers and clinicians. \nJoin us for a day of education\, community\, and fun where you’ll \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians from Southern California\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\nMake connections and engage in meaningful discussions with the local NMOSD/MOGAD community\n\nThis is a free event and lunch will be served. \nWe’re excited to meet you! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-southern-california-patient-day-for-nmosd-mogad/
LOCATION:UCLA Meyer and Renee Luskin Conference Center\, 425 Westwood Plaza\, Los Angeles\, CA\, 90095\, United States
CATEGORIES:Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/06/SoCal-Patient-Day-2.png
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BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/Center:20230401T090000
DTEND;TZID=America/North_Dakota/Center:20230401T160000
DTSTAMP:20260518T152300
CREATED:20230307T134147Z
LAST-MODIFIED:20230329T223017Z
UID:13166-1680339600-1680364800@www.sumairafoundation.org
SUMMARY:TSF's Patient Day for NMOSD/MOGAD in Dallas
DESCRIPTION:TSF is inviting all NMOSD/MOGAD patients\, caregivers\, friends and family in Texas to join us for an exclusive meetup!\nIn collaboration with Dr. Benjamin Greenberg at UT Southwestern Medical Center\, The Sumaira Foundation is organizing a special event dedicated to NMOSD/MOGAD patients\, caregivers and clinicians on Saturday\, April 1st\, 2023 at the Marriott Dallas Uptown. \nPLUS! We’ll be joined by special guest and celebrity chef\, Christine Ha! Christine was diagnosed with NMOSD after experiencing severe vision loss in 2003. Christine was the first blind contestant on MasterChef and the winner of its third season in 2012. In 2023\, Christine is a proud chef\, writer and TV host. \nTSF’s goals for this event include: \n\nmeet local NMOSD/MOGAD patients\, caregivers and clinicians in the Texas region\nprovide updates on the latest research and findings\nfacilitate connections and meaningful discussions for the NMOSD/MOGAD community\nenable patients/caregivers to ask experts questions in real time\nlearn more about The Sumaira Foundation’s mission and ways to get involved to illuminate the darkness of NMOSD/MOGAD\n\nJoin us for a day of connection\, education and community. This is a free event with heavy hors d’oeuvres and an open bar. \nWe’re excited to meet you! \nHugs\, Sumaira
URL:https://www.sumairafoundation.org/event/tsfs-patient-day-for-nmosd-mogad-in-dallas/
LOCATION:Marriott Uptown Dallas\, 3033 Fairmount St\, Dallas\, TX\, 75201\, United States
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/TSF-Patient-Day-for-NMOSDMOGAD-in-Dallas-April-1-2023.png
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END:VCALENDAR