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BEGIN:VEVENT
DTSTART;TZID=Pacific/Honolulu:20260221T110000
DTEND;TZID=Pacific/Honolulu:20260221T170000
DTSTAMP:20260518T151052
CREATED:20260107T153754Z
LAST-MODIFIED:20260128T150925Z
UID:21017-1771671600-1771693200@www.sumairafoundation.org
SUMMARY:TSF's Honolulu Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:Are you or your loved one impacted by MG*\, MOGAD* or NMOSD*?\nTSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Hawaii to join us in Honolulu on Saturday\, February 21st in Honolulu! \nJoin us for a day of education\, community\, and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Natalia Gonzalez Caldito (Hawaii Neuroscience) and Dr. Alexandra Galati (The Queen’s Health Systems) and in partnership with the MG Holistic Society. Registration is free and lunch will be served. We can’t wait to see you in Honolulu! \n\n\n—\n\n\nMG stands for myasthenia gravisMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorderNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/tsfs-honolulu-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:hawaii convention center\, 1801 Kalākaua Ave\, Honolulu\, HI\, 96815\, United States
CATEGORIES:Patient Days,patient days,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/Hawaii-Patient-Day-February-2026-presentation.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260124T100000
DTEND;TZID=America/New_York:20260124T170000
DTSTAMP:20260518T151052
CREATED:20251218T173459Z
LAST-MODIFIED:20260108T173335Z
UID:20879-1769248800-1769274000@www.sumairafoundation.org
SUMMARY:Día del Paciente para Trastornos Neuroinflamatorios Raros - Puerto Rico
DESCRIPTION:¡TSF llega a Puerto Rico el sábado 24 de enero 2026! \nInvitamos a pacientes\, cuidadores\, médicos\, enfermeros\, investigadores y defensores de los pacientes a unirse a nosotros en un día especial dedicado a los trastornos neuroinflamatorios raros. Si usted o un ser querido se ven afectados por alguno de los trastornos que se enumeran a continuación: \n¡Esperamos verlos allí! \n\nEncefalitis autoinmune (EA)\nMOGAD\nNeurosarcoidosis\nNMOSD\nSíndrome de la persona rígida\n\nÚnase a nosotros para un día de aprendizaje\, comunidad y diversión: \n\nPodran conocer a pacientes\, cuidadores y profesionales de la salud de todo Puerto Rico.\nHaga preguntas a expertos en tiempo real sobre el manejo de los síntomas\, tratamientos y terapias\, comorbilidades y mucho más.\nInfórmese sobre las últimas investigaciones y descubrimientos de la mano de expertos.\n\nEste evento se organiza en colaboración con el Dr. José Ávila y la Dra. Patricia De Jesús del Centro de Esclerosis Múltiple de Puerto Rico. La inscripción es gratuita y se servirá almuerzo. \n¡Tenemos muchas ganas de verlos en Puerto Rico! \nLa Fundación Sumaira
URL:https://www.sumairafoundation.org/event/dia-del-paciente-para-trastornos-neuroinflamatorios-raros-puerto-rico/
LOCATION:Hyatt Centric San Juan – Isla Verde\, 8020 José M. Tartak Ave\, Carolina\, Puerto Rico\, 00979\, United States Minor Outlying Islands
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/12/Puerto-Rico-Patient-Day-2026-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251129T130000
DTEND;TZID=Europe/Paris:20251130T130000
DTSTAMP:20260518T151052
CREATED:20250915T142820Z
LAST-MODIFIED:20250915T142820Z
UID:20188-1764421200-1764507600@www.sumairafoundation.org
SUMMARY:3ème week-end Patients et Aidants NMOSD & MOGAD - Lyon
DESCRIPTION:TSF France\, en partenariat avec le MIRCEM\, présente le 3ème week-end Patients et Aidants de la NMOSD et de la MOGAD les 29 et 30 novembre à Lyon ! \nL’évènement\, complétement gratuit\, aura lieu au Mama Shelter de Lyon\, rue Domer\, les 29 et 30 novembre 2025. \nNous sommes ravis d’être accompagnés par les experts du MIRCEM et de nombreux autres intervenants qui nous rejoignent pour ces deux journées d’information. \nVenez rencontrer les acteurs de la NMOSD et la MOGAD\, suivre nos ateliers mais surtout échanger avec d’autres Patients et Aidants qui vivent la même chose que vous. \nVenez mettre en lumière la NMOSD et la MOGAD avec TSF France. \nÀ bientôt! \nL’équipe TSF France (Anass\, Bérengère\, Claire\, Elodie\, Emma\, Fatiha\, Nassima\, Natasha\, Nelly et Selma) \nEnvoyez vos questions à: Berengere@sumairafoundation.org ou guillaume@sumairafoundation.org \nAccès par le métro Station Jean MACE – Parking public à proximité
URL:https://www.sumairafoundation.org/event/3eme-week-end-patients-et-aidants-nmosd-mogad-lyon/
LOCATION:Mama Shelter Lyon\, 13 Rue Domer\, Lyon\, 69007\, France
CATEGORIES:TSF France,TSF Patient Day
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/09/https-cdn.evbuc_.com-images-1121221683-132744545551-1-original.20250911-144625.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20251122T123000
DTEND;TZID=Europe/Rome:20251122T193000
DTSTAMP:20260518T151052
CREATED:20250923T185141Z
LAST-MODIFIED:20251014T165913Z
UID:20228-1763814600-1763839800@www.sumairafoundation.org
SUMMARY:3° Giornata dedicata da malattie neuroimmunologiche rare - Roma
DESCRIPTION:TSF Italia è lieta di invitare tutti i pazienti italiani affetti da encefalite autoimmune\, miastenia grave\, MOGAD e NMOSD\, i loro caregiver e i medici interessati a queste patologie a partecipare a questa giornata di formazione\, convivialità e divertimento. \nIn collaborazione con il Dott. Raffaele Iorio del Policlinico Universitario Agostino Gemelli e in partnership con l’Associazione Italiana Miastenia (AIM)\, TSF Italia è lieta di invitarvi alla 3° Giornata dedicata a pazienti\, caregiver e medici. \n\n\nQuesto evento a libera iscrizione vi permetterà di: \n\nIncontrare pazienti italiani \, i loro caregivers ed i clinici esperti di queste patologie\nPorre domande agli esperti in diretta relative alla gestione dei sintomi\, le terapie\, le comorbidità e molto altro\nAggiornarvi in merito alle ultime ricerche scientifiche con l’aiuto di medici esperti italiani\nFare rete e instaurare connessioni con la comunità locale\n\nL’evento è gratuito e il pranzo sarà offerto da noi.
URL:https://www.sumairafoundation.org/event/3-giornata-dedicata-da-malattie-neuroimmunologiche-rare-roma/
LOCATION:Nazionale Spazio Eventi (Roma)\, Via Palermo\, 10\, Roma\, 00184\, Italy
CATEGORIES:Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/09/Rome-Patient-Day-2025-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251108T110000
DTEND;TZID=America/New_York:20251108T170000
DTSTAMP:20260518T151052
CREATED:20250930T184424Z
LAST-MODIFIED:20251008T032147Z
UID:20250-1762599600-1762621200@www.sumairafoundation.org
SUMMARY:Toronto Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:We’re coming to Toronto! \nAre you an AE*\, MG*\, MOGAD* or NMOSD* patient\, partner\, care-partner\, clinician\, nurse\, researcher and/or advocate in Canada? You’re invited to our event on Saturday\, November 8th. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Dalia Rotstein at the University of Toronto\, Dr. Ann Yeh from SickKids and in partnership with Muscular Dystrophy Canada. \nRegistration is free and lunch will be served. We can’t wait to see you in Toronto! \nThe Sumaira Foundation team \n\n\n— \nAE stands for autoimmune encephalitis\nMG stands for myasthenia gravis\nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder\nNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/toronto-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:The Conference Centre at the OBA\, 20 Toronto Street Toronto\, ON\, M5C 2B8\, Canada
CATEGORIES:Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/09/Toronto-Patient-Day-1920x1080-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251018T110000
DTEND;TZID=America/Los_Angeles:20251018T170000
DTSTAMP:20260518T151052
CREATED:20250822T164117Z
LAST-MODIFIED:20250912T134018Z
UID:20009-1760785200-1760806800@www.sumairafoundation.org
SUMMARY:Seattle Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:We’re coming to Seattle! \nAre you an AE*\, CNS Vasculitis\, MOGAD*\, neurosarcoidosis\, NMOSD* or SPS* patient\, partner\, care-partner\, clinician\, nurse\, researcher and/or advocate from the Pacific Northwest region? You’re invited to our event on Saturday\, October 18th at the UW Medicine Neurosciences Institute. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Shuvro Roy at the UW Medicine Neurosciences Institute\, Dr. Pavle Repovic at Swedish Neuroscience Institute and in partnership with Autoimmune Encephalitis Alliance and The Stiff Person Syndrome Research Foundation. Registration is free and lunch will be served. We can’t wait to see you in Seattle! \n— \nAE stands for autoimmune encephalitis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder \nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/seattle-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:University of Washington\, 4295 Little Canoe Channel NE\, Seattle\, WA\, 98195\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/08/Seattle-Patient-Day-2025-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250928T090000
DTEND;TZID=America/New_York:20250928T160000
DTSTAMP:20260518T151052
CREATED:20250722T151600Z
LAST-MODIFIED:20250722T151600Z
UID:19813-1759050000-1759075200@www.sumairafoundation.org
SUMMARY:TSF's 5k for Rare Neuroimmune Disorders
DESCRIPTION:Join us on Sunday September 28th in Weston\, Massachusetts to run\, walk\, socialize\, and raise funds. (Registration/attendance comes with a free t-shirt). \nThis event is being organized by Terry Clark\, TSF Ambassador of MA and NMOSD patient who says\, “As many of you know\, almost 3 years ago\, in May of 2022\, I was diagnoses with a rare autoimmune disease called NMO. This 5k has been something I’ve wanted to do for years now\, so I’m excited to finally begin this annual race to raise awareness. Early detection of NMO improves quality of life!” \nProceeds from this event will be used to fund researcher rare neuroimmunological disorders. Thanks to grassroots efforts like this\, we’ve been able to fund close to 1m in research since 2018. View our research portfolio here: https://www.sumairafoundation.org/tsf-funded-research/ \nSpread the word; the more\, the merrier! 
URL:https://www.sumairafoundation.org/event/tsfs-5k-for-rare-neuroimmune-disorders/
LOCATION:Weston Town Hall\, 11 Town House Rd\, Weston\, 02493\, United States
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/07/TSF-5K.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Madrid:20250926T150000
DTEND;TZID=Europe/Madrid:20250926T180000
DTSTAMP:20260518T151052
CREATED:20250702T170005Z
LAST-MODIFIED:20250702T170005Z
UID:19683-1758898800-1758909600@www.sumairafoundation.org
SUMMARY:ECTRIMS Patient Community Day 2025
DESCRIPTION:Join us on September 26\, 2025 for ECTRIMS Patient Community Day – an exclusive\, free event designed for individuals living with MOGAD\, MS\, NMOSD and related neurological conditions. \nPatient Community Day is an opportunity to learn about the latest research advancements directly impacting your ongoing care and treatment options. The programme will include engaging roundtable discussions led by international experts\, insightful Q&A sessions\, and a multilingual experience ensuring accessibility for all. \nThis event is FREE to attend. Pre-registration is required. It will be held in English\, with live translations in 50+ languages! \nHave a research question about your condition that you would like answered during the event? As part of the interactive nature of the event\, we invite you to actively participate in our #ECTRIMS4me campaign. Your questions and concerns will shape the agenda\, making this event a true reflection of community-driven support and advocacy. Submit your question: https://www.ectrimspatientcommunity.eu/ask-the-expert \nJoin us as we push the boundaries of knowledge and forge a stronger path toward collective support and well-being.
URL:https://www.sumairafoundation.org/event/ectrims-patient-community-day-2025/
LOCATION:Online and Onsite at CCIB Barcelona International Convention Centre\, Barcelona\, Spain
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/07/ECTRIMS2025_PatientCommunityDay_SocialMedia_Toolkit_v01_GeneralEventBanner_Twitter-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Phoenix:20250816T110000
DTEND;TZID=America/Phoenix:20250816T170000
DTSTAMP:20260518T151052
CREATED:20250707T190725Z
LAST-MODIFIED:20250805T174323Z
UID:19712-1755342000-1755363600@www.sumairafoundation.org
SUMMARY:TSF's Intermountain West Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:TSF is coming to Salt Lake City! \nAre you an AE*\, CNS Vasculitis\, MOGAD*\, neurosarcoidosis\, NMOSD* or SPS* patient\, caregiver\, clinician\, nurse\, researcher and/or advocate from the Intermountain West region? You’re invited to our event on Saturday\, August 16th at the University of Utah Health. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local AE\, CNS Vasculitis\, MOGAD\, neurosarcoidosis\, NMOSD or SPS patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in SLC! \nThe Sumaira Foundation team \n— \nNMOSD stands for neuromyelitis optica spectrum disorder\nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder\nAE stands for autoimmune encephalitis\nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/tsfs-intermountain-west-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:University of Utah\, UT\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/07/SLC-Presenter-Slides.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250726T110000
DTEND;TZID=America/Chicago:20250726T170000
DTSTAMP:20260518T151052
CREATED:20250605T152456Z
LAST-MODIFIED:20250622T201657Z
UID:19507-1753527600-1753549200@www.sumairafoundation.org
SUMMARY:Chicago Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:Are you an NMOSD*\, MOGAD*\, AE*\, MG* or SPS* patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in the Chicagoland area? You’re invited to our event on Saturday\, July 26th at Rush University Medical Center’s Searle Center. We are proud to collaborate on this event with the Chicago MS Alliance. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD\, MOGAD\, AE\, MG and SPS patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in CHI-town! \nThe Sumaira Foundation team \n— \nNMOSD stands for neuromyelitis optica spectrum disorder \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nAE stands for autoimmune encephalitis \nMG stands for myasthenia gravis \nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/chicago-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:Rush University Medical Center\, 1725 West Harrison Street #5th floor\, Chicago\, IL\, 60612\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/06/Chicago-PD-2025-Presentation-Size.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250608T110000
DTEND;TZID=America/New_York:20250608T170000
DTSTAMP:20260518T151052
CREATED:20250417T140359Z
LAST-MODIFIED:20250417T140359Z
UID:19144-1749380400-1749402000@www.sumairafoundation.org
SUMMARY:TSF's Washington DC Patient Day
DESCRIPTION:TSF is coming to the DMV area! \nAre you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in the Washington D.C./Baltimore area? You’re invited to our event on Sunday\, June 8th\, at 11 AM at the Georgetown University Conference Center. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in the capital of the United States! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-washington-dc-patient-day/
LOCATION:Leavey Center\, 560 Tondorf Road\, Washington\, DC\, 20057\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/04/Washington-DC-Patient-Day-June-2025-2160-x-1080-px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250329T110000
DTEND;TZID=America/Los_Angeles:20250329T170000
DTSTAMP:20260518T151052
CREATED:20250306T214916Z
LAST-MODIFIED:20250306T214916Z
UID:18965-1743246000-1743267600@www.sumairafoundation.org
SUMMARY:TSF's San Francisco Patient Day for NMOSD & MOGAD
DESCRIPTION:TSF is coming to San Francisco! \nAre you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in the Bay Area? You’re invited to our event on Saturday\, March 29th at 11 AM at Stanford University – Cardinal Hall\, hosted in collaboration with the neuroimmunology teams at Stanford and UCSF. \nJoin us for a day of education\, community and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in San Francisco. \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-san-francisco-patient-day-for-nmosd-mogad/
LOCATION:Stanford University – Cardinal Hall\, 505 Broadway\, Redwood City\, 94063\, United States
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/03/San-Francisco-Patient-Day-Main-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20241207T110000
DTEND;TZID=Europe/Rome:20241207T170000
DTSTAMP:20260518T151052
CREATED:20241031T141605Z
LAST-MODIFIED:20241031T150931Z
UID:18260-1733569200-1733590800@www.sumairafoundation.org
SUMMARY:2° Giornata dedicata ai pazienti con NMOSD e MOGAD - Verona
DESCRIPTION:TSF è lieta di invitare tutti i pazienti italiani con NMOSD e MOGAD\, i loro caregivers\, ed i medici interessati a queste patologie a partecipare a questa giornata di formazione\, unione e divertimento. \nIn collaborazione con la Dr.ssa Sara Mariotto dell’ Università di Verona\, The Sumaira Foundation è lieta di invitarvi alla 2° Giornata per pazienti\, caregivers e clinici dedicata a NMOSD e MOGAD. \nQuesto evento a libera iscrizione vi permetterà di: \n\n\nIncontrare pazienti italiani con NMOSD e MOGAD\, i loro caregivers ed i clinici esperti di queste patologie \n\n\n\n\nPorre domande agli esperti in diretta relative alla gestione dei sintomi\, le terapie\, le comorbidità e molto altro \n\n\n\n\nAggiornarvi in merito alle ultime ricerche scientifiche con l’aiuto di medici esperti italiani \n\n\n\n\nFare rete e instaurare connessioni con la comunità locale dedicata a NMOSD e MOGAD \n\n\nIl pranzo e il calore di TSF sono inclusi! \nNon vediamo l’ora di incontrarvi! \nTSF Italia
URL:https://www.sumairafoundation.org/event/2-giornata-dedicata-ai-pazienti-con-nmosd-e-mogad-verona/
LOCATION:Crowne Plaza Verona – Fiera\, 16 Via Belgio 37135\, Verona\, Italy
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/2nd-Verona-Patient-Day-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241123T130000
DTEND;TZID=Europe/Paris:20241124T120000
DTSTAMP:20260518T151052
CREATED:20241031T143425Z
LAST-MODIFIED:20241031T143425Z
UID:18265-1732366800-1732449600@www.sumairafoundation.org
SUMMARY:Le 2ème week-end des patients et aidants de la NMOSD & de la MOGAD - Paris
DESCRIPTION:Suite au succès de notre 1ère Journée Patients NMOSD & MOGAD\, nous renouvelons l’évènement les 23 et 24 novembre à Paris ! \nVenez rencontrer des experts\, suivre nos ateliers\, rencontrer les différents acteurs de la NMOSD et la MOGAD. \nVenez mettre en lumière la NMOSD et la MOGAD avec Sumaira et TSF France. \nÀ bientôt! \nL’équipe TSF France (Anass\, Bérengère\, Elodie\, Emma\, Fatiha\, Nelly et Selma)
URL:https://www.sumairafoundation.org/event/le-2eme-week-end-des-patients-et-aidants-de-la-nmosd-de-la-mogad-paris/
LOCATION:FIAP Paris\, 30 Rue Cabanis\, Paris\, 75014\, France
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/2nd-Paris-Patient-Day-Eventbrite.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241005T110000
DTEND;TZID=America/New_York:20241005T170000
DTSTAMP:20260518T151052
CREATED:20241003T145652Z
LAST-MODIFIED:20241003T145652Z
UID:17873-1728126000-1728147600@www.sumairafoundation.org
SUMMARY:TSF's Miami Patient Day for NMOSD & MOGAD
DESCRIPTION:TSF is coming to Miami! \n\nAre you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in Florida? You’re invited to our event on Saturday\, October 5th at 11 AM at Margaritaville Hollywood Beach Resort. \n  \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\nPLUS! We’ll have an educational and interactive session in Spanish led by local experts.\n\n  \nThis in-person event is free and lunch will be served. We can’t wait to see you in Miami! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-miami-patient-day-for-nmosd-mogad/
LOCATION:Margaritaville Hollywood Beach Resort\, 1111 N Ocean Dr\, Hollywood\, 33019\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/10/457129813_495847449743087_1970028794632479223_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Berlin:20241002T100000
DTEND;TZID=Europe/Berlin:20241002T170000
DTSTAMP:20260518T151052
CREATED:20240812T134906Z
LAST-MODIFIED:20240812T134906Z
UID:17708-1727863200-1727888400@www.sumairafoundation.org
SUMMARY:NEMOS Patient:innentag 2024
DESCRIPTION:Expert:innen informieren über Diagnose und Therapie derNMOSD (Neuromyelitis optica-Spektrum-Erkrankungen) und MOGAD\n(MOG-Antikörpervermittelte Erkrankungen). \nNatürlich besteht ausgiebig Möglichkeit für Fragen und für den Austausch mit anderen Betroffenen.
URL:https://www.sumairafoundation.org/event/nemos-patientinnentag-2024/
LOCATION:Frankfurt am Main\, Otto-Fleck-Schneise 4\, 60528 Frankfurt am Main\, Germany
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/08/Untitled-design.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Copenhagen:20240920T150000
DTEND;TZID=Europe/Copenhagen:20240920T180000
DTSTAMP:20260518T151052
CREATED:20240607T133117Z
LAST-MODIFIED:20240607T133117Z
UID:17220-1726844400-1726855200@www.sumairafoundation.org
SUMMARY:ECTRIMS Patient Community Day
DESCRIPTION:Join us on 20 September 2024 for ECTRIMS Patient Community Day – an exclusive\, free event designed for individuals living with MOGAD\, MS\, NMOSD and related neurological conditions. \n  \nPatient Community Day is an opportunity to learn about the latest research advancements directly impacting your ongoing care and treatment options. The programme will include engaging roundtable discussions led by international experts\, insightful Q&A sessions\, and a multilingual experience ensuring accessibility for all. \n  \nThis event is FREE to attend. Pre-registration is required. It will be held in English\, with live translations in 50+ languages! \n  \nHave a research question about your condition that you would like answered during the event? As part of the interactive nature of the event\, we invite you to actively participate in our #ECTRIMS4me campaign. Your questions and concerns will shape the agenda\, making this event a true reflection of community-driven support and advocacy. \n  \nSend in your question  https://bit.ly/4562FhC \n  \nJoin us as we push the boundaries of knowledge and forge a stronger path toward collective support and well-being.
URL:https://www.sumairafoundation.org/event/ectrims-patient-community-day/
LOCATION:Bella Center Copenhagen\, Entrance B0\, Emma Gads Vej 43\, 2300 Copenhagen S\, Copenhagen\, Denmark
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/06/1820-1024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240721T110000
DTEND;TZID=America/New_York:20240721T170000
DTSTAMP:20260518T151052
CREATED:20240611T180014Z
LAST-MODIFIED:20240611T180014Z
UID:17260-1721559600-1721581200@www.sumairafoundation.org
SUMMARY:TSF's Atlanta Patient Day for NMOSD & MOGAD
DESCRIPTION:Are you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in or around Georgia? You’re invited to our special day on Sunday\, July 21st at 11 AM at Emory Brain Health Center. \nIn collaboration with Dr. Grace Gombolay & Dr. Spencer Hutto (Emory) and Dr. Mitzi Joi Williams (Joi Life Wellness)\, The Sumaira Foundation is pleased to invite you to TSF’s Atlanta Patient Day\, a special day dedicated to NMOSD & MOGAD patients\, caregivers\, clinicians and researchers. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis is a free event and lunch will be served. We’re excited to see you in Atlanta! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-atlanta-patient-day-for-nmosd-mogad/
LOCATION:Emory Brain Health Center\, 12 Executive Park Dr NE\, Atlana\, 30329\, United States
CATEGORIES:Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/06/Atlanta-Patient-Day-July-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240615T110000
DTEND;TZID=America/New_York:20240615T170000
DTSTAMP:20260518T151052
CREATED:20240416T171719Z
LAST-MODIFIED:20240416T171719Z
UID:16747-1718449200-1718470800@www.sumairafoundation.org
SUMMARY:TSF's Cleveland Patient Day for NMOSD & MOGAD
DESCRIPTION:Are you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in or around Ohio? You’re invited to our special day! \nIn collaboration with Dr. Amy Kunchok\, Dr. Mary Rensel and Dr. Justin Abbatemarco at the Cleveland Clinic\, The Sumaira Foundation is pleased to invite you to TSF’s Cleveland Patient Day\, a special day dedicated to NMOSD & MOGAD patients\, caregivers\, clinicians and researchers. \nJoin us for a day of education\, community\, and fun where you’ll: \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis is a free event and lunch will be served. \nWe’re excited to see you in Cleveland! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-cleveland-patient-day-for-nmosd-mogad/
LOCATION:Cleveland Clinic Administrative Campus Building 4\, 3175 Science Park Drive\, Beachwood\, 44122\, United States
CATEGORIES:Community Event,TSF Patient Day
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2024/04/https-cdn.evbuc_.com-images-744867119-132744545551-1-original.20240416-153900.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240309T110000
DTEND;TZID=America/New_York:20240309T170000
DTSTAMP:20260518T151052
CREATED:20240116T165451Z
LAST-MODIFIED:20240116T165451Z
UID:15975-1709982000-1710003600@www.sumairafoundation.org
SUMMARY:TSF's New England Patient Day for NMOSD & MOGAD
DESCRIPTION:Are you an NMOSD/MOGAD patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in New England? You’re invited! \nIn collaboration with Dr. Michael Levy at Mass General Hospital\, The Sumaira Foundation is pleased to invite you to TSF’s New England Patient Day\, a special day dedicated to NMOSD & MOGAD patients\, caregivers\, clinicians and researchers. \nJoin us for a day of education\, community\, and fun where you’ll: \n\nMeet NMOSD & MOGAD patients\, caregivers and clinicians from New England\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\n\n\nLearn about updates on the latest research and findings from local key opinion leaders\n\n\nMake connections and engage in meaningful discussions with the local NMOSD/MOGAD community\n\nThis is a free event and lunch will be served. \nWe’re excited to meet you! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-new-england-patient-day-for-nmosd-mogad/
LOCATION:Mass General Brigham\, 399 Revolution Drive\, Somerville\, MA\, 02145\, United States
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/01/New-England-Patient-Day-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231216
DTEND;VALUE=DATE:20231218
DTSTAMP:20260518T151052
CREATED:20230921T193524Z
LAST-MODIFIED:20231031T120656Z
UID:14790-1702684800-1702857599@www.sumairafoundation.org
SUMMARY:Journée des patients et aidants pour NMOSD & MOGAD - Paris
DESCRIPTION:Vous êtes invités à rejoindre la 1ère Journée Patients NMOSD & MOGAD de TSF France à Paris!\n\n\nVenez rencontrer des experts\, suivre nos ateliers\, rencontrer les différents acteurs de NMOSD et de MOGAD. Venez mettre en lumière la NMOSD et la MOGAD avec Sumaira et TSF France.\n\n\nPour vous inscrire\, visitez www.tinyurl.com/TSFParis\n\n\nÉvénement gratuit organisé par TSF France avec le soutien de Horizon Therapeutics\, Alexion Pharmaceuticals et UCB.\n\n\nÀ bientôt!\nThe Sumaira Foundation France (Bérengère\, Fatiha\, Elodie\, Nelly et Emma)
URL:https://www.sumairafoundation.org/event/journee-des-patients-et-aidants-pour-nmosd-mogad-paris/
LOCATION:Villa Lemons\, 5 Impasse Mousset\, Paris\, 75012\, France
CATEGORIES:Patient Days,TSF France
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/09/12.16.2023.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231029T110000
DTEND;TZID=America/New_York:20231029T170000
DTSTAMP:20260518T151052
CREATED:20230921T194947Z
LAST-MODIFIED:20230921T194947Z
UID:14795-1698577200-1698598800@www.sumairafoundation.org
SUMMARY:TSF's New York City Patient Day for NMOSD & MOGAD
DESCRIPTION:The Sumaira Foundation is pleased to invite you to TSF’s New York City Patient Day\, a day exclusively dedicated to NMOSD & MOGAD patients\, caregivers and clinicians. \nJoin us for a day of education\, community\, and fun where you’ll \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians from and around New York City\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\nMake connections and engage in meaningful discussions with the local NMOSD/MOGAD community\n\nPLUS! We’ll be joined by special guest and celebrity chef\, Christine Ha! Christine was diagnosed with NMOSD after experiencing severe vision loss in 2003. Christine was the first blind contestant to ever appear on MasterChef and the winner of its third season in 2012. In 2023\, Christine is a proud chef\, writer\, TV host and NMOSD advocate. \nThis is a free event brought to you by The Sumaira Foundation in collaboration with the Siegel Rare Neuroimmune Association (SRNA). Lunch and hugs will be served! \nWe’re excited to meet you! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-new-york-city-patient-day-for-nmosd-mogad/
LOCATION:Low Memorial Library\, 535 W. 116th St\, New York\, New York\, 10027\, United States
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/09/NYC-Patient-Day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231028
DTEND;VALUE=DATE:20231029
DTSTAMP:20260518T151052
CREATED:20231019T171421Z
LAST-MODIFIED:20231019T173956Z
UID:15022-1698451200-1698537599@www.sumairafoundation.org
SUMMARY:Dia de la NMO 2023: Argentina
DESCRIPTION:La Asociación de Lucha contra la Esclerosis Múltiple (ALCEM)\, La Fundación Sumaira y NMO Argentina convocan a la actividad a realizarse el 28 de octubre de manera virtual y con inscripción previa. Su finalidad es ampliar información sobre esta rara patología y proporcionar formación sobre el tema. Está dirigido a profesionales de la salud\, pacientes y público interesado. \nEste evento será coordinado por los neurólogos Edgar Carnero Contentti y Verónica Tkachuk\, expertos en trastorno del espectro NMO. Además\, contará con la participación de profesionales argentinos especializados e invitados internacionales\, quienes abordarán temas relacionados con el diagnóstico\, tratamiento de síntomas\, nuevos tratamientos y futuro de la enfermedad\, entre otros. \nLa neuromielitis óptica es una patología desmielinizante autoinmune que afecta a los nervios ópticos y a la médula espinal mediante inflamación. El neurólogo francés Eugene Devic fue quien la describió inicialmente en el año 1894 en la ciudad de Lyon\, en su honor\, se conmemora esta enfermedad el 24 de octubre\, fecha de su nacimiento. \nEntre los síntomas más frecuentes se encuentran: disminución de la agudeza visual\, dolor crónico\, trastorno del sueño\, fatiga\, déficit neurológico\, trastornos sexuales\, entre otros. \nDesde ALCEM acompañan a pacientes con este tipo de enfermedades y resaltan la importancia de brindar información y capacitación sobre este tipo de patologías neurológicas\, ya que un diagnóstico oportuno puede permitir a los pacientes tener una buena calidad de vida.
URL:https://www.sumairafoundation.org/event/dia-de-la-nmo-2023-argentina/
LOCATION:Quebec
CATEGORIES:Community Event,Partner Events,Patient Days
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/10/RjrvaKQN5jEC9GZ565nXzGg93G2e2QsSz9BW8uEX.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230722T110000
DTEND;TZID=America/Los_Angeles:20230722T180000
DTSTAMP:20260518T151052
CREATED:20230607T164923Z
LAST-MODIFIED:20230607T164923Z
UID:13853-1690023600-1690048800@www.sumairafoundation.org
SUMMARY:TSF's Southern California Patient Day for NMOSD & MOGAD
DESCRIPTION:The Sumaira Foundation is pleased to invite you to TSF’s Southern California Patient Day\, a special day dedicated to NMOSD & MOGAD patients\, caregivers and clinicians. \nJoin us for a day of education\, community\, and fun where you’ll \n\nMeet local NMOSD & MOGAD patients\, caregivers and clinicians from Southern California\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\nMake connections and engage in meaningful discussions with the local NMOSD/MOGAD community\n\nThis is a free event and lunch will be served. \nWe’re excited to meet you! \nThe Sumaira Foundation team
URL:https://www.sumairafoundation.org/event/tsfs-southern-california-patient-day-for-nmosd-mogad/
LOCATION:UCLA Meyer and Renee Luskin Conference Center\, 425 Westwood Plaza\, Los Angeles\, CA\, 90095\, United States
CATEGORIES:Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/06/SoCal-Patient-Day-2.png
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BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/Center:20230401T090000
DTEND;TZID=America/North_Dakota/Center:20230401T160000
DTSTAMP:20260518T151052
CREATED:20230307T134147Z
LAST-MODIFIED:20230329T223017Z
UID:13166-1680339600-1680364800@www.sumairafoundation.org
SUMMARY:TSF's Patient Day for NMOSD/MOGAD in Dallas
DESCRIPTION:TSF is inviting all NMOSD/MOGAD patients\, caregivers\, friends and family in Texas to join us for an exclusive meetup!\nIn collaboration with Dr. Benjamin Greenberg at UT Southwestern Medical Center\, The Sumaira Foundation is organizing a special event dedicated to NMOSD/MOGAD patients\, caregivers and clinicians on Saturday\, April 1st\, 2023 at the Marriott Dallas Uptown. \nPLUS! We’ll be joined by special guest and celebrity chef\, Christine Ha! Christine was diagnosed with NMOSD after experiencing severe vision loss in 2003. Christine was the first blind contestant on MasterChef and the winner of its third season in 2012. In 2023\, Christine is a proud chef\, writer and TV host. \nTSF’s goals for this event include: \n\nmeet local NMOSD/MOGAD patients\, caregivers and clinicians in the Texas region\nprovide updates on the latest research and findings\nfacilitate connections and meaningful discussions for the NMOSD/MOGAD community\nenable patients/caregivers to ask experts questions in real time\nlearn more about The Sumaira Foundation’s mission and ways to get involved to illuminate the darkness of NMOSD/MOGAD\n\nJoin us for a day of connection\, education and community. This is a free event with heavy hors d’oeuvres and an open bar. \nWe’re excited to meet you! \nHugs\, Sumaira
URL:https://www.sumairafoundation.org/event/tsfs-patient-day-for-nmosd-mogad-in-dallas/
LOCATION:Marriott Uptown Dallas\, 3033 Fairmount St\, Dallas\, TX\, 75201\, United States
CATEGORIES:Community Event,Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/TSF-Patient-Day-for-NMOSDMOGAD-in-Dallas-April-1-2023.png
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