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UID:19683-1758898800-1758909600@www.sumairafoundation.org
SUMMARY:ECTRIMS Patient Community Day 2025
DESCRIPTION:Join us on September 26\, 2025 for ECTRIMS Patient Community Day – an exclusive\, free event designed for individuals living with MOGAD\, MS\, NMOSD and related neurological conditions. \nPatient Community Day is an opportunity to learn about the latest research advancements directly impacting your ongoing care and treatment options. The programme will include engaging roundtable discussions led by international experts\, insightful Q&A sessions\, and a multilingual experience ensuring accessibility for all. \nThis event is FREE to attend. Pre-registration is required. It will be held in English\, with live translations in 50+ languages! \nHave a research question about your condition that you would like answered during the event? As part of the interactive nature of the event\, we invite you to actively participate in our #ECTRIMS4me campaign. Your questions and concerns will shape the agenda\, making this event a true reflection of community-driven support and advocacy. Submit your question: https://www.ectrimspatientcommunity.eu/ask-the-expert \nJoin us as we push the boundaries of knowledge and forge a stronger path toward collective support and well-being.
URL:https://www.sumairafoundation.org/event/ectrims-patient-community-day-2025/
LOCATION:Online and Onsite at CCIB Barcelona International Convention Centre\, Barcelona\, Spain
CATEGORIES:Community Event
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DTSTART;TZID=America/New_York:20250928T090000
DTEND;TZID=America/New_York:20250928T160000
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UID:19813-1759050000-1759075200@www.sumairafoundation.org
SUMMARY:TSF's 5k for Rare Neuroimmune Disorders
DESCRIPTION:Join us on Sunday September 28th in Weston\, Massachusetts to run\, walk\, socialize\, and raise funds. (Registration/attendance comes with a free t-shirt). \nThis event is being organized by Terry Clark\, TSF Ambassador of MA and NMOSD patient who says\, “As many of you know\, almost 3 years ago\, in May of 2022\, I was diagnoses with a rare autoimmune disease called NMO. This 5k has been something I’ve wanted to do for years now\, so I’m excited to finally begin this annual race to raise awareness. Early detection of NMO improves quality of life!” \nProceeds from this event will be used to fund researcher rare neuroimmunological disorders. Thanks to grassroots efforts like this\, we’ve been able to fund close to 1m in research since 2018. View our research portfolio here: https://www.sumairafoundation.org/tsf-funded-research/ \nSpread the word; the more\, the merrier! 
URL:https://www.sumairafoundation.org/event/tsfs-5k-for-rare-neuroimmune-disorders/
LOCATION:Weston Town Hall\, 11 Town House Rd\, Weston\, 02493\, United States
CATEGORIES:Community Event
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