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X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;TZID=America/New_York:20260913T090000
DTEND;TZID=America/New_York:20260913T120000
DTSTAMP:20260706T184839Z
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UID:22788-1789290000-1789300800@www.sumairafoundation.org
SUMMARY:TSF 5K For Rare Neuroimmune Disorders
DESCRIPTION:Turning Miles into Medical Progress – Join us on September 13th for TSF’s 2nd 5K to raise money for research! \nLast year’s inaugural 5K helped fund a groundbreaking AI-powered diagnostic initiative with the potential to transform how rare neuroimmune diseases are identified around the world. \nUsing only a smartphone image\, this technology is being developed to rapidly and accurately analyze diagnostic testing\, helping clinicians detect rare neuroimmune conditions earlier – especially in underserved regions where access to specialized care and testing is limited. Earlier diagnosis can lead to faster treatment\, better outcomes and a greater chance of preventing permanent disability\, vision loss and disease progression. \nWhat started as a community race is now helping drive a global solution that could expand access to life-changing care for patients everywhere. By participating in this year’s 5K\, you are not just supporting awareness; you are directly fueling innovation\, earlier diagnosis and hope for the rare disease community worldwide. \nThis is a family-friendly event – all are welcome (including doggos!) https://runsignup.com/Race/MA/Weston/TSF5KForRareNeuroimmuneDisorders \n\nThis event is being organized by Terry Clark\, NMOSD patient and TSF Ambassador of MA: “As many of you may know\, four years ago\, May 2022\, I was diagnosed with a rare autoimmune disease called NMO. This 5k has been something I’ve wanted to do for awhile so I’m excited to continue organizing this annual race.”
URL:https://www.sumairafoundation.org/event/tsf-5k-forr-are-neuroimmune-disorders/
LOCATION:Weston Town Hall\, 11 Town House Rd\, Weston\, 02493\, United States
CATEGORIES:Community Event,TSF Events/Fundraisers
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/TSF-5K-2026.png
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DTSTART;TZID=America/New_York:20260913T120000
DTEND;TZID=America/New_York:20260913T130000
DTSTAMP:20260522T091238Z
CREATED:20260522T091238Z
LAST-MODIFIED:20260522T091238Z
UID:22150-1789300800-1789304400@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Rewards of Caregiving
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-rewards-of-caregiving/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/HCP-Caregiver-Visual-.png
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