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UID:22217-1780488000-1780491600@www.sumairafoundation.org
SUMMARY:The Human Collective Project - Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by rare neuroimmune diseases. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD patients felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 202\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/the-human-collective-project-africa/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/HCP-Master-169-Facebook-Cover-1-scaled.png
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DTSTART;TZID=Europe/Rome:20260603T180000
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UID:22085-1780509600-1780513200@www.sumairafoundation.org
SUMMARY:Salute Mentale e Malattie Rare: Strategie Per il Benessere Quotidiano
DESCRIPTION:Unisciti a noi il 3 giugno alle ore 18:00 CET per un webinar dedicato al tema ‘Salute Mentale e Malattie Rare: Strategie per il Benessere Quotidiano’\, con la partecipazione della Dott.ssa Emanuela Stoppele dell’Università di Verona. https://us02web.zoom.us/webinar/register/WN_HiLsvF5DR66ArBAK3WkDPw  \nVivere con una malattia rara può avere un impatto profondo sulla vita quotidiana — dal punto di vista emotivo\, fisico e sociale — sia per i pazienti che per i caregiver. Durante questo incontro\, la Dott.ssa Stoppele approfondirà il legame tra salute mentale e malattia cronica\, offrendo strategie pratiche per rafforzare la resilienza emotiva\, gestire lo stress\, migliorare la comunicazione e promuovere il benessere generale. \nPensato per pazienti\, familiari e caregiver coinvolti nelle malattie neuroimmuni rare e correlate\, il webinar offrirà uno spazio di confronto e supporto per comprendere meglio le sfide psicologiche legate a queste condizioni complesse e l’importanza di un approccio di cura globale e integrato. \nL’evento è aperto a pazienti\, caregiver\, professionisti sanitari e sostenitori della comunità delle malattie rare. \nQuesto programma è stato reso possibile grazie al supporto di Amgen e Alexion.
URL:https://www.sumairafoundation.org/event/salute-mentale-e-malattie-rare-strategie-per-il-benessere-quotidiano/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts
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