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X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;TZID=Europe/Warsaw:20231026T150000
DTEND;TZID=Europe/Warsaw:20231026T160000
DTSTAMP:20260414T225401
CREATED:20231006T151219Z
LAST-MODIFIED:20231006T151433Z
UID:14929-1698332400-1698336000@www.sumairafoundation.org
SUMMARY:MOGAD - Pytania Pacjentów - Odpowiedzi Specjalisty
DESCRIPTION:Po raz pierwszy w Polsce na pytania pacjentów dotyczące MOGAD odpowie dr hab. Maciej Juryńczyk\, Ordynator Oddziału Neurologicznego w Szpitalu Wolskim w Warszawie\, neurolog specjalizujący się w leczeniu tej rzadkiej choroby neurologicznej. Zapraszamy serdecznie do wysłuchania naszej rozmowy wszystkich zainteresowanych\, a w szczególności osoby borykające się z objawami neurologicznymi i szukające diagnozy. Program ten jest możliwy dzięki wsparciu Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/mogad-pytania-pacjentow-odpowiedzi-specjalisty/
LOCATION:Virtual: Poland\, Poland
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/10/Maciej-Jurynczyk.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20231026T190000
DTEND;TZID=Europe/Amsterdam:20231026T200000
DTSTAMP:20260414T225401
CREATED:20231018T173046Z
LAST-MODIFIED:20231018T173046Z
UID:14975-1698346800-1698350400@www.sumairafoundation.org
SUMMARY:HCP DK with participation of dr. Nasrin Asgari
DESCRIPTION:Kære NMOSD og MOGAD patienter og pårørende. \n  \nVi er glade for at invitere dig til et særligt Zoom-møde med den ansete professor-neurolog af syddansk Universitet\, Dr. Nasrin Asgari. \n  \nDr. Nasrin Asgari\, en fremtrædende neurolog med omfattende ekspertise i NMOSD og MOGAD\, slutter sig til os som en særlig gæst. Hendes værdifulde indsigt og erfaringer vil blive delt under mødet\, og det giver en fantastisk mulighed for at lære af en af ​​feltets førende fagfolk. \n  \nDenne virtuelle samling har til formål at give støtte\, information og inspiration til dem\, der er ramt af NMOSD eller MOGAD \n  \nVi opfordrer alle deltager til dele deres egne erfaringer\, udveksle tips og tilbyde støtte til hinanden. Det bliver et sikkert rum\, hvor vi alle kan mødes\, lære og vokse som et fællesskab.
URL:https://www.sumairafoundation.org/event/hcp-dk-with-participation-of-dr-nasrin-asgari/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/10/Denmark-The-Human-Collective-Project-1.png
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DTSTART;TZID=America/New_York:20231026T200000
DTEND;TZID=America/New_York:20231026T210000
DTSTAMP:20260414T225401
CREATED:20230116T195434Z
LAST-MODIFIED:20230207T174616Z
UID:12496-1698350400-1698354000@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-22/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/04/Human-Collective-Project-Web-Banner.png
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