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DTSTART;TZID=America/New_York:20230412T120000
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UID:13426-1681300800-1681304400@www.sumairafoundation.org
SUMMARY:Pediatric MOGAD & NMOSD
DESCRIPTION:You’re invited to attend “Pediatric MOGAD & NMOSD” on Wednesday\, April 12th at 12:00 PM EDT featuring Dr. Brenda Banwell\, Chief of Child Neurology and Co-Director of the Neuroscience Center at the Children’s Hospital of Philadelphia\, Professor of Neurology and Pediatrics\, and Grace E. Loeb Chair in Neuroscience at the Perelman School of Medicine\, University of Pennsylvania. \nLive attendees will have the opportunity to ask Dr. Banwell questions in real time. This webinar will be recorded and available for replay on TSF’s Multimedia Library and YouTube channel. \nThis educational event is made possible through a patient education grant from Horizon Therapeutics.
URL:https://www.sumairafoundation.org/event/pediatric-mogad-nmosd/
LOCATION:Virtual: United States\, United States
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/Brenda-Banwell.png
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DTSTART;TZID=America/New_York:20230412T190000
DTEND;TZID=America/New_York:20230412T203000
DTSTAMP:20260405T152952
CREATED:20230312T140038Z
LAST-MODIFIED:20230316T151900Z
UID:13212-1681326000-1681331400@www.sumairafoundation.org
SUMMARY:Meet the Author | Kyle Bryant\, "Shifting Into High Gear"
DESCRIPTION:TSF is pleased to invite you to an exclusive “Meet the Author” fireside chat between Sumaira and Kyle Bryant\, an author\, athlete\, speaker\, and spokesperson for Friedreich’s Ataxia Research Alliance (FARA). \n“Shifting Into High Gear” charts the course of Kyle’s transformation as he journeys on a recumbent tricycle across the United States in the throes of Friedreich’s ataxia\, a life-shortening and disabling disease. Full of humor and reflection\, it’s a heroic journey of a man driven to reframe the language of disease through action and service. \nAttendees will have the opportunity to ask Kyle questions in real-time. Registration is required.
URL:https://www.sumairafoundation.org/event/meet-the-author-kyle-bryant-shifting-into-high-gear/
LOCATION:Virtual: Global
CATEGORIES:Meet The Author
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2023/03/Meet-the-Author-March-2023-1.png
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DTSTART;TZID=Europe/Amsterdam:20230412T193000
DTEND;TZID=Europe/Amsterdam:20230412T203000
DTSTAMP:20260405T152952
CREATED:20230116T185826Z
LAST-MODIFIED:20230207T172129Z
UID:12408-1681327800-1681331400@www.sumairafoundation.org
SUMMARY:TSF Plauderstunde | HCP Germany
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince launching in 2020\, we have expanded the program to offer more sessions and in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feel welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors around the world. \n 
URL:https://www.sumairafoundation.org/event/tsf-plauderstunde-hcp-germany-4/
LOCATION:Virtual: Germany\, Germany
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2022/12/2.png
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