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UID:12936-1678816800-1678822200@www.sumairafoundation.org
SUMMARY:Les MOGAD et NMOSD chez l’enfant et adolescent
DESCRIPTION:Rejoignez-nous le mardi 14 mars pour le prochain webinaire “From the Experts” de TSF en français avec Dr. Kumaran DEIVA\, neuro-pédiatre à Paris\, qui parlera et répondra aux questions sur la NMOSD pédiatrique et la MOGAD. \nLes participants auront la possibilité de poser des questions au Dr Deiva en direct et en français. Le webinaire sera enregistré et disponible pour répondre sur le site Web et la chaîne YouTube de TSF. \nCet événement est soutenu par la subvention d’Horizon Therapeutics pour l’éducation des patients.
URL:https://www.sumairafoundation.org/event/les-mogad-et-nmosd-chez-lenfant-et-adolescent/
LOCATION:Virtual: France\, France
CATEGORIES:From The Experts
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UID:12547-1678820400-1678824000@www.sumairafoundation.org
SUMMARY:TSF Book Club | "Shifting Into High Gear" by Kyle Bryant
DESCRIPTION:You’re invited to join TSF’s next book club meeting on March 14th \, during which we’ll discuss “Shifting Into High Gear” by Kyle Bryant.\n\n\nShifting Into High Gear charts the course of Kyle Bryant’s transformation as he journeys on a recumbent tricycle across the United States in the throes of Friedreich’s ataxia\, a life-shortening and disabling disease. Full of humor and reflection\, it’s a heroic journey of a man driven to reframe the language of disease through action and service. \nAs you travel with Kyle during two cross-country bike rides through the American West\, Texas\, the Southern States\, and finally to the shores of the Atlantic Ocean\, the grueling rides become a compelling backdrop for a series of lessons and ruminations which embrace an alternative worldview and provide practical solutions to everyday problems. A thrilling adventure story\, yes\, Shifting Into High Gear is also ultimately about helping readers reinterpret the conditions of their lives and learning how positive thinking\, purposeful connection\, and deliberate actions can help anyone reach beyond their limits and live a bolder and bigger life no matter what the circumstance.\n\nDeeply passionate and compassionate\, Kyle uses his amazing story to teach readers how to replace the handicapping language of “disability” with the agency to build a thriving and hopeful life. He bravely exposes the shadow-side of using disabling language and asks us to commit to a collective goal of understanding disease and its emotional impact and embrace the disabled population as equal individuals. In telling his story\, Kyle’s desire is that instead of viewing disease as a deficit\, we would see it as another state of being—simply as a life which strikes out on a different path.
URL:https://www.sumairafoundation.org/event/tsf-book-club-shifting-into-high-gear/
LOCATION:Virtual: United States\, United States
CATEGORIES:TSF Book Club,TSF Programming
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